I went over the results of my latest MRI with my neuro the other day. I have 2 new lesions. He said we'll have to keep an eye on them, we don't want them getting bigger. Well then how do I keep them from getting bigger?? How do I control this? I WANT to know, I NEED to know! I know there really aren't answers, but WHY can't someone figure this thing out???AAARRRGGGHHH!!!!!!!!!!!!!!! Ok, taking in deep cleansing breath......I'm just in a funk, feeling a little sorry for myself. I haven't talked to anyone about it because I don't want to say it out loud. I know it doesn't make much sense, but right now I'm only comfortable using this forum as my outlet. It's my safeplace I suppose. I just adore you all so much, our community does more for me than I could ever put into words, thankfully, with you all, I don't think I need to.~~~Jess

I understand what you mean about using this as your only outlet. I feel that way most of the time. I don't know anyone, in person, who is going to through MS. And it's very hard for people to understand who aren't actually going through it, try as they might!

I wish someone had all the answers, I really do... "they" say they are getting closer to the answers!!! So I try to hang on to that.

But, it's okay to be down sometimes... Shoot I got down about things before my dx, so I'm still human... and so are you! WE ARE HERE FOR YOU anytime you want to vent! I have learned there are a lot of smart folks here at NT who know much more than me! Don't be afraid to depend on them!!!

You are in my thoughts and prayers,
~Friend

Come here homey

Let it out Jessie. My earplugs are in.

Thank you both so much! And thank you for accepting my whining with such support!

Awww Jessie, you know we are here for you girl! Lesions are just that, stupid little lesions that serve no purpose but to scare the daylights out of each other. Jim has a ton of them but his last MRI only showed one active one, the others dim. It's the placement of where they are in most cases that really matters in the long run.

I honestly can't imagine what it's like to have something in your body that you have no control over. But we are great listeners!

I'm sorry Jess..I have an appointment with my neuro next month to go over my latest MRI, sporting at least one new lesion (I just didn't ask when they called). You're not whining! It's good to be able to get out whatever you're feeling to people who've been there..We're all here for each other, that's the whole point of this forum, isn't it?

Well, theoretically, this is the reason we are on the DMD's, to hopefully reduce the number of lesions and attacks. What drug are you taking, and did he mention considering a switch?

I don't get MRI's as I will not switch my drug of choice anyway. My neuro says "what's the point in knowing then?", and I agree . . . why stress yourself out if you have no intentions of changing meds anyway?

Cherie

I know how stressful this whole thing can be.

Imvho unless someone has a near clear MRI playing the "count the lesion" game isn't always the most productive. Its my understanding that since the images don't have the exact same placement from one MRI to the next, I have heard lesions can show one time and then disappear the next and that different Docs can count different numbers on the same film so I look at the MRI as just one puzzle piece but not the whole picture.


Although in all fairness my "numerous lesions" doesn't really led itself to a solid count so maybe thats why I don't pay too much attention. I do keep getting MRIs aprox. every 18 months just to see in case there is a significant change because at that point I would most definitely change therapies.

Hang in there and please if you find a way to keep them from getting bigger let us know!

Great points, Jules.

Cherie

I can only speak for myself here..It's not so much the "count the lesion" game (though I understand and agree with what you're saying)..It just lets the air out of my sails when I hear there are more. I know control is an illusion (and not just with MS), but it's disheartening to do "all the right things" and still have this happen. I get over it, for sure..But it's still a bummer.