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HiCy/Revimmune at Johns Hopkins

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Old 06-16-2008, 06:28 PM #21
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Quote:
Originally Posted by Rednebulab View Post
Hi Red,

Have you actually gone thru this procedure yet? I recently contacted Johns Hopkins about this for my 29-year-old son.

Thanks,
Red
Good question, RP. You even brought a nice person out of lurkdom, to ask it.

What's new, have you been OKed for the procedure?
Thinking about you and hoping for you..
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Old 06-17-2008, 01:30 AM #22
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Default Heading to Baltimore in 2 weeks
I am heading back to baltimore on June 29th. I will enter the hospital on July 3rd and begin treatment.

To the Other Red - I'm gonna PM you right now...

~Keri
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Old 06-17-2008, 07:21 AM #23
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Hmmmm... the high dose chemo is scary to me, but I live real near johns hopkins. Wonder how it will do. I'm still more kind toward stem cells.
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Old 06-17-2008, 11:13 PM #24
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Quote:
Originally Posted by RedPenguins View Post
I am heading back to baltimore on June 29th. I will enter the hospital on July 3rd and begin treatment.

To the Other Red - I'm gonna PM you right now...

~Keri
Hey Keri

Keep us posted on your progress! This is a very interesting procedure.
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Old 06-18-2008, 12:40 PM #25
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Keri - From the few sources I have read it sounds very promising. Please keep us posted on your results and best wishes for you.
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Old 06-27-2008, 08:34 AM #26
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I am so sorry I had no idea this site was here

I have had the treatment. I am getting better everyday. I feel better everyday and my MRI shows it as well.

I have a web site that is the same as my user name. It has the whole experience kept on it down to blood counts. My wife did it all and did a great job!

You folk on here seem to be clinically smarter about the whole thing than other places I frequent so I think the info on what I went through would help you out.

If you guys have questions though please ask them through these forums so it benefits everyone.
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Old 06-27-2008, 02:05 PM #27
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Red Penguins, I know your appointment is closing in fast. I just want to wish you good luck and a good journey!!!
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Old 06-27-2008, 06:44 PM #28
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So sorry I haven't been around for awhile to join in this thread. My prayers will go with you RP that you will come through this treatment with flying colors and that MS will be a thing of the past for you.

Has this been in trial for those of us with SPMS? Some time ago I read about something that was supposed to rejuvinate the mylen, but haven't heard anything further. Very interesting!
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Old 06-27-2008, 07:39 PM #29
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All this treatment does is allow the body to stop attacking itself. Once it does the body can repair damage that is not too severe.

Black holes on an MRI were thought to be too far gone but they are learning that with this treatment the black holes have actually shrunk.

I feel great! 95 today and it was hot but I didn't nap! Last summer I slept through the whole day...er 12pm till 4pm or so.
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Old 06-27-2008, 07:42 PM #30
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Has this been in trial for those of us with SPMS? Some time ago I read about something that was supposed to rejuvinate the mylen, but haven't heard anything further.

Johns Hopkins is starting SPMS this fall
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