I'm just wondering if anyone has used this for pain and if you have did it or does it help?

Yep, I'm still trying to find something that will help with pain and obviously not having a lot of luck

Not tried it, but sorry you are still having to search! Snoops!

Hi Snoopy,

I actually had to look at my pill bottles to make sure thats what I'm taking. My first Neuro. gave me Gabapentin for pain but my last Neuro gave me this stuff - Trileptal. I had to use 7 days of 1/2 a pill (twice a day) and now I just started the full dose of two pills daily. I think it works a little, but hasn't taken away all my pain on the left side. I really don't know which worked better, the Gabapentin or this. If this doesn't get better I might go back to the Gabapentin since this is $170 since my insurance is capped out. I just started using this about 8 days ago but it has made my left side a little better but not sure if other pain killers might be better

Monique

I don't know about the Med, just wanted to give you a Gental healing hug..

Sorry for your continued pain Snoopy! I have pain too, and I think it's controlled somewhat by Cymbalta. I'm trying to cut down to 30mg from 60 and my pain is more intense. I doubt my pain is as bad as yours though.

I'm also down to one Baclofen a day. I don't like that they all make me so foggy. I wish they'd come up with something that would just block the pain, and leave all the other senses intact with no side effects. That would be a best seller.

I hope Trileptal will work for you. I have a friend with TN who takes Tegretol and it's all that helps. She doesn't like to take it, but doesn't like the TN pain more. :-(

My mom takes this in combination with another med and it works great for her. She has Trigeminal neuralgia and it causes extreme pain. This is the only thing that's worked for her.

I am taking it for TN and have had relief. My TN is not severe. It comes and goes.

So far it has helped a great deal with the soreness and aching I have in the right side of my face. I can actually put my head on a pillow at night to sleep now.

But it is not doing a great job on the sharp break through pains I get once in a while. But over all I am happy with it.


As for the rest of my body I have noticed an decrease in the edgy uncomfortable feeling I get in my legs and lower back.

It has taken things down to a low roar right now. We'll see if it stays that way. I assume it is all nerve pain I am getting a bit of relief from.


I am on a low dose right now. As long as that works well enough to make me happy I am not going to increase what I am taking.



LA

Monique, thanks for the laugh although I'm sure that wasn't your intention ( I have a strange sense of humor )

I'm starting Trileptal like you - half a pill (300mg) twice a day for 1 week then 1 pill twice a day. I don't usually take much medication so I need to go through all the different meds and start throwing out what hasn't helped before I get confused

LA, I'm glad Trileptal is helping. At this point I would be happy with a med that would take the edge off but if I find a med that takes the pain completely away I'm throwing a party

Wouldn't that be great Wiz - no side affects and no pain. We can dream

Here's a list of what I have tried so far and either the med has not helped or I have had trouble with side affects:

Cymbalta
Lyrica
MJ
Nortriptyline
Klonopin - I get some relief but only for a couple of hours

I've been on Trileptal for siezures since, Jan '07. I wanted to go off it, but since the doc believes the MS is making me susceptable to them, I'll be on it forever.

Last month, I had run out and didn't realize it for a few days. The darn tinglies, heaviness and numbness in my hands had gotten unbearable. When I realized the lapse, I doubled the doses that day. I was amazed that it really made a difference in my pain level. Now I'm willing to take more in hopes of more relief.

I take 150mg 2xday and 300mg at bedtime. It does make me a bit sleepy, but I take Amantadine in the AM to help.

I hope you get some relief. I swear the sensory stuff is pure HE!!. Let us know.

Thanks, Beth.

I will let you and everyone else know if Trileptal or any med helps. In fact I will probably shout it from the roof tops

I'm glad Triletal has helped you