First let me say to Punky how sorry I am for the death in your family and the stress it's caused you. For some reason, my old webtv wouldn't let me reply in that thread. Hopefully things will get back to "normal" soon.

Well, all winter I couldn't wait until the nice weather returned.....okay, today it did with the usual humidity. My central A/C is on!! But the PAIN is through the roof. I never know if it's from this lovely MS or the fibromyalgia. Today was one of those days when I didn't think I could take it anymore. My feet and legs are about twice the size they should be and are sooooo heavy, it's really hard just to lift them up enough to put my foot in the pant leg.

Then I can't seem to stay awake. Every time I plan to do something like pay bills, read, etc., I've discovered I've been asleep again so nothing gets done. Has anyone who sits in a "chair" all day, noticed that your shape has changed? Seems like my butt has spread part way up my back and my hips and thighs are way too big. It's really a challenge to pull up the pants!! Such a stupid thing, can't stand up long enough without tipping backward to pull them up, one hand at a time so it takes forever. Who would have "thunk" it? How the heck are you supposed to exercise when nothing moves? I HATE THESE DISEASES!!!!

As for the stress mentioned in Punk's thread, I truly believe it has a tremendous effect on these autoimmune diseases. For example, I've become friends with the wife of my "ex". I know, it's weird. She wasn't involved in our divorce and she's confided in me as to some "problems" they're having. Anyway, she's spoken with a doctor/counselor who told her that prolonged stress can be a trigger for some of these diseases. After my 24 years of putting up with his "stress" causing actions, I developed MS and fibromyalgia and after a few years of marriage to "him", his new wife now has lupus. Great record huh??? His mom had altzheimers, so we'll see. Doesn't that sound terrible?

Guess you can tell my AD isn't working too well today!! Maybe because it's been another holiday weekend alone. Family life continues to go on around us, but when we can't participate any longer no matter what the cause, we seem to be written off and become non-people. Do you find this to be true in your lives also?

Perhaps it's time for more permanent help. Some of the stress is most likely caused by the frustration of not being able to do things like I used to and needing more help for everything. And TOO MUCH PAIN!!! If never goes away and nothing helps to lessen it.

Now that I've depressed everyone who has read this whole mess, I'm sorry. It's difficult to sound happy when it feels like every nerve in your body is on fire. Who else would understand? Thanks for listening........

Aw crap, Judy, it doth sucketh indeed. I think it's good and cathartic for you to post away and express some of this junk "out loud". It's what we do here.

What you said about not being able to get dressed or do things the way we used to do them hits home, and hard, with me. Just in this past year the changes have been a little overwhelming. Try as we may, there are simply days when it gets to us and there is no shame in that.

Tomorrow is a new day, let's hope it's a better one.

Well, crapola, Judy. I hear you loud and clear, especially the part about being a non-person when it comes to family get togethers. I'm just too much trouble.. I don't give a #$@, I don't wanna go anyway...pfffft

I don't have any wise words for you but just wanted you to know...you're not alone..

OMG, Judy, I married your ex too!



We gotta do coffee and talk sometime.

I'm going into a flare or something. Spent all day on the couch, half asleep in pain and with vertigo. I have a ton of laundry to do, but I was home alone and didn't wanna fall down the stairs with nobody but the wee dogs to help if I fell.



And I never had a weight thing, but I keep gaining and gaining... waddup with that? Mine's mostly my top half, which is really wierd. It's more like swelling. I can't wear half my rings, gained 15 lbs...



Dh and the kids had to work, and I was a bit disapponted that they didn't open the pool - I'll live. I'll live with being on my own for the MDay weekend too. I have my critters to keep me company, and they're better company than my family anyway.

(so nah nah, family.)

Hugs, Judy.

It sucks. Hope you feel better for getting it out there. I do.

Ahhh, the four F'S. Well, I have three of them (fatigue, fat and freakin' MS)!!

Just like BGB I am steadily gaining weight - mostly in the top half of my body. And the girls were already ummm....very noticeable.....so any extra weight there just isn't necessary or appreciated (at least by me ).

I know I need to exercise but the fatigue makes even thinking about it very tiring. Whenever I get the desire to exercise I just lay down until the urge passes!!

(((hugs)))

I am glad you were able to make friends with the Ex's wife. its a clear sign that you are able to let him go, and live his own life. Good for you!

now, take a nap, take a bubble bath, pet the kitties, or puppies, and watch the fish in the tank. Do things that you need to do so that YOU are the priority.

That's funneh, Kitty!

Hi all,
Im new here.
The fatigue is so depressing. Nothing like sleeping your life away. My doc finally put me on dexadrine and it's a blessing. At least I can stay awake and get a few things done. I was diagnosed originally with fibro but they were wrong.
Whats with the weight gain anyways??? I have gained 20 pounds. I used to have a hard time keeping weight on. But then Im not walking 5 miles a day like I used to.
I have a small garden which I love. Its a good thing its right outside the door though. I can just stumble right out to it

One thing I've learned is to value every accomplishment, no matter how small.

Hang in there,

Paula

Well, if those "sage comments" didn't cheer me up, nothing will!! It's really great to have a sense of humor through all of this crapola!!

Kitty, you mentioned gaining weight on the top half - me too, but it's across my back. Sure, can't even gain it in the right place!!! LOL

I do feel some better today, but the weather has changed again. A/C on last night, thunder storm today and now it's windy, chilly and feeling like November all over again. It does help the pain a little though.

Thank you all soooooo much for your encouragement!! Every so often, being alone gets to me but when I think about being married to my ex......YIKES....the loneliness is much better. And Sally, I'd rather be here alone actually rather than outside at picnics and a kid's birthday party even though I complain about that too. Those all day outdoor things began bothering me w--a--y back when my in-laws were still alive. Would get terribly achey and that was pre-MS and fibro. Now the "bladder issue" is a problem too when going anywhere.

OH NO bgd.........You must have snuck in there with my ex after me and before his new one!!! So sorry!!! We're much better friends than husband and wife -- for a day only, then I remember why we're divorced!!!!!!

Thanks again for being there everyone.......the "normals" could never understand!

Hugs.......

Hi Judy! I understand how you feel. The barometric changes are messing w/my Fibro something fierce, as I seem to ache so much lately. I have come to the realization that the OLD ME wasn't as bad as I thought it was.

The new, achey, breaky me sucketh right along w/the rest of you guy's suckeths!!!! I'm not even making sense to me.

Hope tomorrow is better day for you Judy!