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-   -   What have you lost to MS? (https://www.neurotalk.org/multiple-sclerosis/46604-lost-ms.html)

mom23angels 05-27-2008 05:20 PM

Noidy,
You have new friends here and we know what you're going through! :) I used to say I wanted to be back at my pre-kids weight, well.. I guess I found a reason how to do that just not the way I planned. More and more I'm learning to adapt since this is all still new to me. I guess the hardest part is I'm definitely a type A personality and letting go of some of my control is very hard to do.

Monique

Riverwild 05-27-2008 05:38 PM

Flygirl, my friend,

I am not going to list the things lost here on my end. You already know what they are.

It's funny that you should write this post at this time. I was looking at the pics of the MW GTG and the thing that first struck me about myself in those pictures was how incredibly TIRED I look (nevermind how much weight I have gained!). Add that realization in to how long it has taken me to recuperate from the whole thing and it's like getting a slap in the face all over again as to what this stupid disease takes from us all.

I don't have any good advice except to rest more and do what you can, when you can, and to let you know that I'm here and hugging you and mourning with you for all the losses.:hug:

I think maybe I'm not alone in this, yanno? Coming here and letting it all out is more like this! :grouphug::grouphug::Crowded::grouphug::grouphug:

weegot5kiz 05-27-2008 06:31 PM

sandy makes a good point trying to slow down or pace oneself, which is easier said than done, but it is very important, but i also must agree with what your thread is about. I use to be able to walk many miles a day, and I cant anymore, and yes it does get the best of me and upset me

Jappy 05-27-2008 06:51 PM

Cheryl all I can say is that it has changed my life completely.

You know all the problems that goes with it.

With my dh passing 2 yrs. ago sx have been worse. Maybe it is
depression that is getting to me. I don't know.

The past 3 months the fatigue has been bad. I just can't find the
energy to do so many things. Wanted to get things in my flower garden
done before the heat came, but the weather has been crazy, now today
summer has hit. Went outside for about 30 min. had to come back in.

Stay in the house in Winter****Cold
Stay in the house in Summer****Hot

No happy meeting

You rest and realize all the good you have been doing for MS
Split your priorities up. Tomorrow is another day.

I should take my own advice :D

Jappy :hug:

Ivy2 05-27-2008 07:06 PM

a bf of 17 yrs. lol
a job of 36 yrs.
use of a lot of my legs and hands - most important of all...

but not my sense of humor:) and my love of life.

SandyC 05-27-2008 08:31 PM

Quote:

Originally Posted by Ivy2 (Post 288257)
a bf of 17 yrs. lol
a job of 36 yrs.
use of a lot of my legs and hands - most important of all...

but not my sense of humor:) and my love of life.

I don't know if this was meant to be funny or not but if you read it the way I just did you'd all be ROTFL. :ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO: :ROTFLMAO:

SallyC 05-27-2008 08:42 PM

:circlelove: (((((((((((Cheryl))))))))))) :circlelove: Bless your Pea picking Heart..:D

That's the horror of this %$#@$ disease....It chooses to strike us during the prime of our lives and dwindles us down untill we have little of our old selves left.:mad:

Am I a little bitter...Nahhhh..:rolleyes: :D I am thankful, like Cherie says. that it happened to me slowly over the years and I was able to lead a fairly normal life until it hit me again in my 50s....then the bottom started fallin out and I sort of lost all the big stuff, like walking, running, driving, bowling, partying, strength and youth, over the last 10 years.

You are still one of my heroes, Cheryl..I just know things will get better for you soon..:hug:

Friend2U 05-27-2008 08:57 PM

Dear Koala,
 
Quote:

Originally Posted by Koala77 (Post 287745)
The list goes on and I mourn for the loss of my career, but the thing that hurts me most is my grandbaby.

I have a beautiful grandson, and I'm too frightened to pick him up in case I drop him. The thing I hate the most about this rotten disease is not being able to be a normal, cuddly grandma, like most grandmas are. :(

This is one of my biggest fears. I am expecting my first grandson in August. I fear I am not going to get to be the Grandma that I want to be. But I will do my best. A lot of what you said hits home! :hug:

~Friend

PolarExpress 05-27-2008 09:04 PM

OK Cheryl..Don't let this go to your head or anything (:rolleyes:), but I've always admired you. You've always seemed so strong, even if you didn't feel like it, and have helped others stay afloat thru their questions and fears of this disease thru your words..We've all lost something to the MonSter, but we've all gained something, too..
(((HUGS)))
...Kris

Friend2U 05-27-2008 09:15 PM

Cheryl,
 
Bless you heart... sometimes it just gets to be too much. :hug: It's not fair...anyway you look at it. Darn it!

You are in my thoughts and prayers. :smileypray:

~Friend


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