[Noidy]

I have a symptom question that I'm not sure is common of ms or not. For the past 5 years, any time I would eat or drink, I would feel what I thought was sort of a "hot flash" and then I would begin throwing up..violently. During this time, I noticed that I could eat Sushi or Subs, or pudding..anything cold.. and wouldn't become ill. I also noticed that I didn't sweat very much, even in the hottest weather..but would become very disoriented, and see spots, become dizzy, and start foaming at the mouth. I've literally stuck my head in public fountains before. I know that MS had a degree of heat sensitivity. I just want to see if mine is on the "normal" level or if anyone else experiences it.

I recently got some free cooling equipment from the MSAA, which has been a lifesaver, especially the vest. The other night, I was drinking some coffee, and got one of those "hot flashes", and held my head themometer to my abdomen. The temp was 105... so i put my cooling vest on. I didn't throw up that time, but I noticed my body has trouble eliminating heat from the food I am consuming. Is this part of the heat sensitivity that comes with ms??

My tongue and throat have also gone numb and get worse with hot food or liquids. I've had swallowing problems for a really long time.

If anyone else has this problem, some advice would be great. Ty.

[SallyC]

I love hot food and soup, but I have to wait untill it cools down, before I can eat or drink it.

I perspire, can't swallow and then cannot get up and walk, after eating anything Hot.

My Advise...LOL...don't do it.

[Noidy]

Originally Posted by SallyC

I love hot food and soup, but I have to wait untill it cools down, before I can eat or drink it.

I perspire, can't swallow and then cannot get up and walk, after eating anything Hot.

My Advise...LOL...don't do it.

Good advice sally. Sorry you have to go through this too, but i'm glad to hear i'm not totally alone with this problem. Thanks for the advice.. oh how I shall miss my hot coffee, but lukwarm isn't so bad once you get use to it.

[mom23angels]

Originally Posted by Noidy

I have a symptom question that I'm not sure is common of ms or not. For the past 5 years, any time I would eat or drink, I would feel what I thought was sort of a "hot flash" and then I would begin throwing up..violently. During this time, I noticed that I could eat Sushi or Subs, or pudding..anything cold.. and wouldn't become ill. I also noticed that I didn't sweat very much, even in the hottest weather..but would become very disoriented, and see spots, become dizzy, and start foaming at the mouth. I've literally stuck my head in public fountains before. I know that MS had a degree of heat sensitivity. I just want to see if mine is on the "normal" level or if anyone else experiences it.

I recently got some free cooling equipment from the MSAA, which has been a lifesaver, especially the vest. The other night, I was drinking some coffee, and got one of those "hot flashes", and held my head themometer to my abdomen. The temp was 105... so i put my cooling vest on. I didn't throw up that time, but I noticed my body has trouble eliminating heat from the food I am consuming. Is this part of the heat sensitivity that comes with ms??

My tongue and throat have also gone numb and get worse with hot food or liquids. I've had swallowing problems for a really long time.

If anyone else has this problem, some advice would be great. Ty.

I am in deep trouble either way ..lol. I have a hypothyroid so I hate the cold and I have MS so I shouldn't be in the heat. I mostly stay cool and wear my socks BUT I love hot chocolate!! I used to drink Coffee but I gave that up for my substance abuse class for a project but now I've been drinking hot chocolate like an addict. I don't know if I have heat sensitivity. Sometimes I get sweaty and cannot finish the drink, but gosh.. I sure love to try!!

Monique

[MSCherokee]

What a timely post as I was eating hot potato soup while reading the boards and had to stop and let it cool down. I've got sleeves rolled up, sipping on a cool drink and waiting for my temp to go down so I can finish eating.

Sally's right - don't do it is the best approach. I only do it if I'm at home where I know I can move (or not move) at my own pace. LOL And, I've also been known to stick my head and hands in the freezer to cool off in a hurry - Shhh, don't tell hubby who'd complain about me wasting electricity.

[tovaxin_lab_rat]

Have you had your thyroid checked? Just a thought.

I have what's known as Uhthoff's Syndrome or Uhthoff's Phenomenon. Historically, it usually affects the optic nerve. Neurologist's have now come to the realization that it affects the whole body. It's core temperature related.

Anyway, when my core temperature rises above 99+ for any length of time, I suffer from pseudo-exacerbations. If I do not get myself cooled down and rehydrated within a couple of hours, I end up paying for it by increased symptoms for a longer period and may even end up with a full-blown exacerbation! I learned that the hard way by not listening to my body.

Since I work outside, I have learned to stay well hydrated during any time of the year, not just the summer months. Even during the cooler winter months, I can suffer from this syndrome. It's core temperature related, not outside air temperature. I find also that I have to watch over doing when I exercise as well.

So, to answer your question, this may be what you are also experiencing. I have provided a link for you for some additional information. I have had my thyroid checked so that's not an issue.


http://www.mult-sclerosis.org/Uhthoffssymptom.html

[NurseNancy]

i don't experience quite yours sx's but i am very heat intolerant.
it can only take 1/2 to 1 degree rise in your body temperature to trigger sx's.

i get very fatigued and very weak.
i almost feel like i can't move.
my vision starts getting blurry.

i have a cooling collar that works well but i have to be very careful in the warmer months.

i'm glad you were able to get those cooling aids.
i'd check this out with your pcp and neuro.
maybe some labwork is in order?

[tovaxin_lab_rat]

Originally Posted by NurseNancy

i don't experience quite yours sx's but i am very heat intolerant.
it can only take 1/2 to 1 degree rise in your body temperature to trigger sx's.

i get very fatigued and very weak.
i almost feel like i can't move.
my vision starts getting blurry.

i have a cooling collar that works well but i have to be very careful in the warmer months.

i'm glad you were able to get those cooling aids.
i'd check this out with your pcp and neuro.
maybe some labwork is in order?

Judy

Have you contacted the MSAA for the FREE cooling vest?

[Noidy]

Originally Posted by Av8rgirl

Judy

Have you contacted the MSAA for the FREE cooling vest?

First, thank you for the link on Uhtoff's symptom. Now I have a name to go with the symptoms. Glad to hear it's probably MS related. I've had my thyroid checked, and it was fine about 6 months ago. It's probably due to be checked here again soon too.

The MSAA sent me my free cooling vest. All I had to do was print out the paperwork, fill it out, and have my doctor write that I was diagnosed with Multiple Sclerosis on a prescription tablet. I had my vest, wrist bands, neck band, and a hat within days. The hat is a little uncomfortable as my head is kinda small, and the ice feels like a brick on my head, but once it melts just a little, the hat has done wonders keeping the sun out of my eyes. Those people are awesome for hooking us people with MS up with what we need. This year they've given me my summer back. I haven't been outdoors in over 70 degree weather in 5 years without becoming horribly sick. I've used the vest once outdoors already, and it was awesome to be outdoors again. I don't even mind what it looks like a bit because it gets me where I need to go. The wrist and neck bands are good for a quickk cool down, and I actually sleep in my neck band. It allows me to cover up because the breeze from my fan burns my skin.. (having someone put my a/c soon, as this year i can't lift it). A warm breeze feels like bees stinging me so until i get my ac in, I have to use a sheet to cover up.

Ty again for the link. Now I have a name to go with one of my worst symptoms.

[FinLady]

My hubby and I love spicy foods. I've noticed lately that my bod will overheat if I eat too much of them. I have to wait until my coffee and other stuff cools down too.

I least I'm not going crazy, lol. I'm glad to hear others have these issues too.