FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#1 | |||
|
||||
Elder
|
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
|||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Legendary
|
Thanks FG. How exciting is that? Let's hope it's not all hot air 'cos that sounds good.
I'll be sending that link on to some of my Ozzie Mser friends.
__________________
Eastern Australian Daylight Savings Time and my temperature . |
|||
![]() |
![]() |
![]() |
#3 | |||
|
||||
Wisest Elder Ever
|
How exciting!! Hopefully it will be available next year. I'd love to give it a try.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
![]() |
![]() |
![]() |
#4 | |||
|
||||
Senior Member
|
Thanks Cheryl
I was in a phase I trial years ago for Fampridine. Although I didn't end up being one that got the med, I still felt it was a good thing being a part of a clinical trial. I'm glad to hear things are going well with the med. And it's not an injection! Yay! ![]()
__________________
-- Beth RRMS -dx 1997 Never doubt that a small group of thoughtfully committed citizens can change the world; indeed, it's the only thing that ever has. - Margaret Mead Breathe In HOPE, Breathe Out DETERMINATION |
|||
![]() |
![]() |
"Thanks for this!" says: | tovaxin_lab_rat (05-27-2008) |
![]() |
#5 | |||
|
||||
Legendary
|
Just a bit of feedback for you FG.
I sent this link that you provided to some Ozzie MSers, and I've had some emails back. They're now looking forward to hearing more about it. Thank you.
__________________
Eastern Australian Daylight Savings Time and my temperature . |
|||
![]() |
![]() |
"Thanks for this!" says: | tovaxin_lab_rat (05-27-2008) |
![]() |
#6 | |||
|
||||
Elder
|
Quote:
BTW, we saw previews of the movie "Australia" that will be coming out in the Fall. Looks like it might be pretty good. Nicole Kidman will be in it and I forget who else....I wasn't paying that much attention until I saw the title.
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
|||
![]() |
![]() |
"Thanks for this!" says: | Koala77 (05-27-2008) |
![]() |
#7 | |||
|
||||
Legendary
|
Quote:
I think it'll be an excellent movie, from the shorts I saw on Australian TV. A bit is even filmed in the tiny town of Bowen in Queensland's mid northcoast, and my sister lives there. They had most of the locals as extras in that part of the film. It's where they drive the beasts through the town to the sale yards for the auction. Nicole was there for that part.
__________________
Eastern Australian Daylight Savings Time and my temperature . |
|||
![]() |
![]() |
"Thanks for this!" says: | tovaxin_lab_rat (05-27-2008) |
![]() |
#8 | ||
|
|||
Junior Member
|
I've used this med off & on for the last 7 years when I needed extra leg power. I have a GP who Rx'ed it and found a compounding pharmacy who knew how to make it.
I don't use it now that I'm on Tysabri but it really does help with nerve transmission. For those of you that want to try it, you don't have to wait if you have a Doc that will work with you on this. I printed the info off the Accorda website and gave him the name and number of the pharmacy I wanted to use and in a couple of weeks I had my med. |
||
![]() |
![]() |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Well, it started out to be a video... | Parkinson's Disease | |||
Video on YouTube | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Video on YouTube | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
new video | Parkinson's Disease | |||
Positive Results of Phase 3 Study of Fampridine-SR on walking | Multiple Sclerosis |