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-   -   Sleeping modifications?? (https://www.neurotalk.org/multiple-sclerosis/46738-sleeping-modifications.html)

mom23angels 05-28-2008 07:59 PM

Quote:

Originally Posted by AfterMyNap (Post 288954)
It seems like we all have a customized bedtime ritual. Mine includes Unisom every night, the rx ones wrecked my days more than the fatigue. I do my Zanaflex, then use a percussion massager on my thighs which helps the foot/calf spasms settle down, my heels go over the edge of the foot of the bed which helps keep them relaxed; and I must have my feather pillow to keep my head from rolling to the side because of vertigo. I stick my hands flat under my hips to hold them still and open. I rarely wake in the night but I do wake each morning to find myself in the traditional fetal position.

For me, the getting to sleep is the hardest part and I find that my window of opportunity is about 30 minutes after the ritual. If I ignore it, it will be a long night.

I didn't have sleep issues until the past couple of months and I guess I'm just trying to adjust to it all. I realize that my Baclofen and other meds cause sleeping problems and hope that as my body gets use to the dosage it might be slightly easier. I definitely do not want the muscle spasms in the middle of the night so I don't mind taking the baclofen.

I will probably go to the mall this wk end and see if they have some mattresses 'cause the local walmart only has the eggcrate stuff. Grr.. I wish I could sleep on my tummy 'cause I don't think it would be as bad 'cause of my spinal lesions and the numbness/hypersensitivity on my left side. Maybe I'll just get some sleeping pills that won't make me groggy the next day! Thanks!
Monique

Erin524 05-28-2008 09:59 PM

I had the two inch memory foam mattress pad. Got it for Xmas in 2005, and slept on it for about 4 months until I developed numbness in my right thigh in April of 2006 (first obvious sensory symptom I had. Was told it was a sprain :eek:)

Slept on the memory foam for another month or three until I couldnt stand it anymore. It was like I would get even more numb in areas that didnt seem to have numbness when I would sit or sleep on the mattress pad.

I ended up giving the matress pad away to my boyfriend's roommate when my parents gave their old king sized waterbed to my boyfriend. (rolled up the pad and stuck it in with bedframe when boyfriend and roomates came to collect the bed)

The memory foam even made my fingers numb when I touched it. I thought for the longest time I was allergic to a chemical in the mattress pad (which is pretty much made up of dead dinosaurs aka petroleum based products)

Made my weird hip pain worse to lay on that mattress pad. At first I only had hip pain in my left hip (numbness in the right hip) and I slept pretty much excusively on my left side. It was when the numbness moved onto my right hip and thigh that I couldnt take it anymore and that's when I gave it away.

For my sleeping problems, I now occasionally take amitriptyline. Which I might not take for much longer, since it seems to exacerbate the dry eyes I've been having problems with lately.

Sometimes seems like everything I take for one problem causes me another problem. Ahhh...modern medicine is just wonderful.

Ivy2 05-28-2008 10:12 PM

I take Elavil (amitriptyline) every night to blunt the pain and if the pain and spasms are bad I add Zanaflex to it. I can only sleep on my right side - the pain is less there.

MSacorn 05-29-2008 12:06 AM

Quote:

Originally Posted by mom23angels (Post 288944)
Beth,

Is it a Memory foam mattress?? I have a memory foam pillow I sleep on ..and that kinda sounds like it. I have to sleep on my sides, I just can't on my back or front. And with my left side hypersensitive/numb and my right side is the side that gives me muscle spasms I don't know what I'm going to do. Maybe I'll just keep experimenting until I can find something. Thank you!!

Monique

Yep, memory foam, now why couldn't I remember that? :confused: Must be MS. :D

Have you tried doubling it, by folding it in half? I did that for about a month, then I went back to a single layer and feel better now.

I'm a side sleeper too. I'm so sorry you can't enjoy a good side sleep. Much luck as you try and try to find the right relief for you. Please share any good hints you discover.

:hug:

Noidy 05-29-2008 03:22 AM

Sleep..what's that??? (see time of post)

I'm a chronic insomniac, and have been for many many years. Xanax helps me alot, but I'm past my legal limit tonight and still as awake. I've tried valium, and it's like candy. I've tried Lunesta, and woke up dumping hot coffee over my hand that I made in my sleep.

What makes me this more frustrating is in the morning, I'll be exhausted, just in time to start another day.

grrrrrr....

Are you allowed to take Nyquil with your current meds? It worked for me in a pinch, but can't take it with my xanax.

Kitty 05-29-2008 05:27 AM

I'm not sure what is going on with me but I am having trouble staying asleep.

I get sleepy, fall asleep and then wake up an hour or two later. Go back to sleep, sleep an hour or two and then wake up again. It's maddening!

I take Trazodone before bed (50 mg) and I'm wondering if I can up the dose. I don't take anything else with it because I'm not sure if I can take Baclofen and/or Neurontin with it.

I just wish I could get at least 5 consistent hours of sleep. I've never needed a lot of sleep but this one to two hours thing is for the birds!

mom23angels 05-29-2008 08:57 AM

Quote:

Originally Posted by herekitty1960 (Post 289161)
I'm not sure what is going on with me but I am having trouble staying asleep.

I get sleepy, fall asleep and then wake up an hour or two later. Go back to sleep, sleep an hour or two and then wake up again. It's maddening!

I take Trazodone before bed (50 mg) and I'm wondering if I can up the dose. I don't take anything else with it because I'm not sure if I can take Baclofen and/or Neurontin with it.

I just wish I could get at least 5 consistent hours of sleep. I've never needed a lot of sleep but this one to two hours thing is for the birds!

Gosh..
Now I feel bad about my 3 hours of sleep before I wake up...and then sleep for another couple hours and then I'm up for the day. I am going to call my Neuro. today not that it'll help much but I really think the headaches/dizziness and vision probs. are from blood pressure issues since it only happens when I wake up even though the UGA dr. thinks its the trileptal.

Grr.. I feel like I never should of went to the dr. for the vision probs because that was my only symptom and now I have a ton of symptoms and on a ton of medication.. what can of worms did I open? See how grouchy I get with lack of sleep! :mad: What's trazadone? Does it give a grogginess the next day like reg OTC sleeping pills?

Monique

Kitty 05-29-2008 11:15 AM

Quote:

Originally Posted by mom23angels (Post 289250)
Wat's trazadone? Does it give a grogginess the next day like reg OTC sleeping pills?


Trazodone is an antidepressant used for a sleep aid. It's an old drug - been around forever - and my Neuro said that it was safe to take. It makes me very sleepy soon after I take it but it doesn't seem to make me groggy the next day. I take a 50 mg dose at bedtime but I'm wondering if I can take more since I seem to wake up a lot during the night.

Noidy 05-29-2008 02:02 PM

My xanax helps me sleep without making me all groggy, but I only get about 3-5 hours at a time. I now pop one quite often , and the effects are wearing off. When I don't take them, I don't sleep, and cry constantly. May ask about the trazidone.

Erin524 05-29-2008 03:24 PM

I have some Trazodone. It makes me feel weird, kind of nervous feeling the next day, but then so does the Amitriptyline.

I never take my sleeping meds at full strength. I break the pills in half and then break the halves in half and only take a 1/4 of a pill. Seems to get me to sleep. I'll wake up every 3 hours tho, but that's better than either not sleeping, or waking up every hour.


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