Jan, you sound so sad that I just want to hug you and make it all better, but I also wanted to say that I agree with the others on two things.

1: You ain't going no-where!

Your our's now, and we don't give "our's" up that easily. You're part of our little community and you belong here with us ...... and ......

2: You need to get a second opinion!

Jan,


Please don't go....

You have given so many others kind words and encouragement now it's our time to give it in return.

I don't have a dx yet... but i feel this is the place to be since only we know what it's like to have sx with no dx.

Please stay...

Hugs
Cindy

You are just going through so much right now... bless your heart ... I offer you encouragement through thoughts and prayers!

God Bless,
~Friend

Jan,

You have always been so supportive of us, and had great suggestions.

I know that you're frustrated. But don't give in to it...be positive in thinking that there's an answer...you just haven't found the messenger yet.

I hope you're keeping a journal of sxs...

Most of all, try your best to live for the moment. I know it's difficult when you don't feel well and you're concerned about what's going on inside. But try to live a high-quality life to the best of your ability.

Jan as one limbo islander to another keep the faith

Hi Jan~ Yeah, the ole MS Merry-Go-round chews and spits out quite a bit. Sounds like you need to take a breather while at your vacation spot and then think about another opinion. You are a valuable and trusted member here and even if you don't currently have a firm DX, you are always helping others.

Take care and keep us posted, OK???

Yes I see this as another lesson. AND my plan this year was to eliminate as many docs/meds as possible. So far so good. heheheee

Both Rhuemies gone, the 2nd saying he doesnt need to see me as my problems are not in his field and suggested I might have an autonomic problem. Now gthe neuro ophlomologisgt gone as I am not on the med she had to check and my vision is STILL blurry at times even with new glasses...

OK so what if I do now if I have an "episode" ? I do what I have been doing. Take another Atenolol 25 mg when I feel the symptoms come one and I dont end up in the ER unable to communicate or move my body yet can hear. I just feel that is all related to the lesions on the PONS... but what do I know.

The MS doc said he'd still like to follow me... yeah.. out the door LOL

So with my job changing hopefully soon, and new insurance I may get a 2nd opinion.

I FEEL BETTER already. The getaway weekend was fabulous..just too dang short. Because I will be changing jobs I wont be having time off for months.

BUT THANK YOU ALL for your understanding that only YOU comprehend so well.

Back at ya... may random acts of kindness find each and everyone... and soon ok?

Warmly and gratefully,

Jan

I am so sorry that you continue to struggle. Being sick and not having answers really sucks! I for many years was told I had a "migraine" syndrome. it turns out it was MS. I didnt chase the dx as I didnt know any better. (some nurse I am) MS never crossed my mind as what I had.

If I could go back, I would QUADRUPLE my life insuracne. I would bump up ALL my benefits packages. I would make sure I got all those bits of paper in a row, BEFORE getting my dx of MS. It just so happens that the moment you get that dx you cant get insurance. They locked my current policies, and i was not able to buy more. Once I left my job, i lost a big policy.

I hope you are able to find some answers soon. Just having an answer eases your mind so much. good luck.

Your attitude is very inspiring Jan~

Glad you had a nice wkend. Good luck w/the new job. Your new employer is lucky to have you!

((((Jan))))


Good words from everyone.

Add to all that my continued support.

I think you hit the nail on the head in seeing this as some sort of lesson. It may be the least scenic part of the trip, but keep an eye out the window anyway because it is part of the journey.

We may not know where this bus is going to drop us off, but we're all on it together. And we have cookies.