I understand motor sx, vision, cognitive sx, etc., but I don't get the sensory sx. These are just feelings, or lack of I guess if you have numb spots, right? But whatever your symptoms, they are all an indication of possible lesion activity. So, if my legs feel like they're going to give out on me, does it mean they won't, since it's not a motor sx? Is there something different going on when your legs feel like jello than when they feel like they weigh a ton each?

I'm on steroids again. This time I had three days IV solumedrol and will get one IV every month for six months. I get my second IV next Saturday and I can't wait, my legs get worse each day for the past 10 days, plus other sx are coming back, and the pains in the palms of my hands is new.

It's hard not to let this stuff get you down. I just don't feel like I'm holding this stuff off or slowing it down even a little bit with all the meds, diet, exercise, etc. It's going to be a l-o-n-g two years.

hi catch.

i can understand how the sx's can be confusing.
sensory usually has to do with feeling like you said. like numbness or tingling.
i would consider pain to be neuropathic.

to me, when your legs don't seem to hold you up, i'd consider that to be motor. my legs feel like that sometimes too as most of my sx's are motor related, and mobility related. all sx's and your general clinical picture would be from MS. and if it's from MS that means as a result of lesions and CNS involvement/damage.

it's hard to say if your legs will give out or not. if i get too fatigued or too hot i feel like i could collapse. and i think i would if i didn't get off my feet.

why do you say 2 yrs? what's that marker about?
and, can i ask if you're on any DMD's?
what have your mri's said?
do your tx's help?

I say a long two years, because I've heard the first two years after dx are the toughest, with often times the most frequent relapses, etc. It's only been six months since my dx and while I'm getting somewhat used to what my "standard" sx are, new ones still pop up every few weeks.

I am on Copaxone and have been since one month after dx. I've also taken IV steriods with a ten day taper in February. Now I'm doing the lower dose solumedrol for 6 months.

My MRIs show only a few small brain lesions, although the neuro thinks there must be some forming on my spine which my be affecting my legs. I recently discovered that the current MRI machines can only detect lesions of a certain size. New MRI machines are now able to detect much smaller lesions, but most places do not have these new machines yet.

thanks for the info.
it sounds like your drs are going full steam ahead on tx's.

i hope they all help.
it's so hard to predict the future with MS or how any one person will do.

please keep us posted on how you are.