[Snoopy]

For those that don't know:

I started seeing a new neuro in 2007. This was the first time I had a new neuro since I was dx'd. Yes, the neuro who dx'd me is still practicing

The new neuro kept refering to me as having MS/Devics (NMO). He was a little freaked out by my c-spine lesions His reference to NMO was starting to tick me off - I don't believe I fit NMO and he wasn't real helpful in helping me find something that would help my pain.

So back to my original neuro. He also didn't think I had NMO and said the other neuro was going by the old way of thinking. I had the blood test for NMO just for peace of mind. Results - Negative.

Trileptal - appears to be working. My pain level has decreased

My neuro is increasing the dosage - slowly. I did blood work today to check my electrolytes as Trileptal can deplete electrolytes.

My pain does increase with hormonal fluctuations and I asked him about that. He said they see women have an increase of MS symptoms with hormonal changes but they also see it with seizures, migraines and other disorders.

My neuro said my pain appears to be nerve pain of some sort but he doesn't like to say it's definitely MS. He thinks it's important to think outside the box and keep an eye on it just in case, over time, my symptoms and pain indicates looking in a different direction.

[AfterMyNap]

Thanks for the update, LA, I know that pain has been troubling you for a long time. Let's hope this Trileptal can kick its lousy butt.

So, a new movie? Finding NMO...

[NurseNancy]

well, this neuro sounds a lot more intelligent than your "new" one.
what class of drug is trileptal?

hope it helps you feel better snoop.

[Snoopy]

Hi, Judy.

Trileptal is an anticonvulsant and/or antiepileptic drug. (hope I got that right )

http://www.drugs.com/trileptal.html


AMN, Finding NMO.....too funny

[mom23angels]

Yay Snoopy!!
Glad the Trileptal is working for you!! I had to google Devics I am just happy that the Trileptal is taking some of the pain away!

Monique

[DM]

Hey LeeAnn ~~ Hope the Trileptal continues to help w/your pain mgmt. I have been trying to find something to help w/mine, but the side effects seem to add more angst to the situation.

Hang in there Snoops and take care.


I'm ready for the movie. Is NMO a fish????

[Snoopy]

Originally Posted by mom23angels

I had to google Devics

Oops! Sorry!

Here is a link about NMO (Devics):
http://www.mayoclinic.org/devics-disease/

Devics was once considered a MS variant but has since been recognized as a seperate disease. Devics is hereditary and the reason there is a blood test.

Originally Posted by daisymay

I have been trying to find something to help w/mine, but the side effects seem to add more angst to the situation.

I'm ready for the movie. Is NMO a fish????

I have often wondered what's worse - the treatment and side effects or the pain. So far I'm not having any side effects

Man, I hope I didn't just jinx myself

NMO? A fish? sure, whatever you say

[SallyC]

Thanks for the update, Snoopers..

I am sooooooo happy to hear Triposomething is working for you....WooHoo..

[Snoopy]

Originally Posted by SallyC

I am sooooooo happy to hear Triposomething is working for you....WooHoo..

[SandyC]

Good to hear you have found something to help with the pain. Finally. Hugs.