[Lynn]

Hi there
Glad I found the site. I was diagnosed RRMS just over five years ago, and luckily for me, according to my MRIs I have had little of no progression in that time.

I went to my neurologist last month, and he told me that when I first presented I had so many lesions and so many areas affected that he expected me to become secondary progressive within two years.

Now I have reached the five year mark and all is well he told me that he thinks my MS is benign and he expected I would never have any more problems (other than residual damage that is a pain but I can live with it).

I so want to believe this....does it sound right to you? I use beta, and the doc said it looked like it was working brilliantly (obviously) so keep it up.

Thanks for letting me rave on

Lyn

[karilann]

First of all, Congratulations!
I think its great that you have good news five years after diagnosis.

However; it was always been my understanding that benign MS was considered after 10 years of no increased disability.

I was diag in 2002. So far so good and my MRI's have not changed. I too inject beta 1b.
My MRI's were really bad and the doc couldn't believe I was the same person standing before her with such a bad MRI.
So, some people show lots of lesions and very little symptoms and some people show few lesions with major symptoms.

MS...the snowflake disease....no two cases are exactly alike.

[Snoopy]

Hi Lynn and welcome!

Most neuro's don't use benign any longer....The problem is you may have benign MS but only until it no longer is.

The only thing about MS you can predict is it's unpredictability.

I am very glad you are doing so well and I hope you have many more years of stability.

[SallyC]

Well, I had 17 yrs of benign or MS lite before having my 2nd exacerbation from hell, and then SPMS. I was on no MS modifying drugs, during that time.

So here's hoping that you and my Daughter (who has benign MS) stay that way for many years to come.

Welcome Lynn.

[Judy2]

Hi Lynn and Welcome! This is really a great place for friendship, information and support. I sure hope and pray your ms stays 'silent'. Looking back, think I had it way back in 1976 after optic neuritis, but wasn't diagnosed until 1990 with RRMS. It stayed fairly inactive until the past two or three years when it moved to SPMS.

I'm really thankful it wasn't a problem when my kids were growing up, it's bad enough now that I can't 'play' much with my grandkids.

Good luck to you......Judy -- aka msproperlady

[chez]

Lynn, Hi from another Aussie! There aren't too many of us around here, don't know why, as the forums are excellent. Which state are you in? Glad to hear your MS is pretty stable at the moment - fingers crossed that it stays that way!

[Lynn]

Thanks everyone for your kind words.

I still have fatigue, bladder, balance and vision problems left over from my first (recorded) exacerbation. But if this was as bad as it gets - thank God!

Guess I will just have to wait and see, I know it is really unpredictable but I left the doctors office walking on cloud nine.

I live in NSW Chez - out in the west (major drought area). I think from memory from the old forum, you are in Vic - is that right???

Cheers
Lyn

[chez]

Originally Posted by Lynn

I live in NSW Chez - out in the west (major drought area). I think from memory from the old forum, you are in Vic - is that right???
Cheers
Lyn

Good memory Lyn! - I'm on the border of Vic & SA, and I'm sorry to rub it in but it's raining here at the moment, although we've had a really dry winter and the farmers are all crying drought too. Are you on a farm/property?

[Lynn]

Chez

If I knew how to blow a raspberry at you online I would! Wish it would rain a bit more here.

We aren't on a farm, we live in town, but a lot of my friends are on properties and it is heartbreaking to see them facing this year after year.

NOTHING would convince me to go onto a farm - too unpredictable, I am too much of a control freak. Maybe that's why MS is hard - I can't conrol it, although I am working on it. lol

Cheers
Lyn

[SallyC]

It seems that most prople with MS are Control Freaks.
That's probably what got us here..