ok, told you I would come back and correct the six sx of critera for the dx.

1. Occular (1 of 3)

Dry eyes for longer than 3 months.
Sensation of a foreign body in the eye
Use of artificial tears more than 3 times per day for longer than 3 months.

2. Oral sx (1 of 3)

Dry mouth for longer than 3 months
Swollen salivary glands
Need liquid to be able to swallow foods/pills

3. Occular testing (1 of 2)

Unanesthtized Schirmer test << 5mm/5min (they put strips in your eyes to measure tear flow
Vital eye staining. (a vegetable dye is added to your eye and they can see the dry spots on the cornea, or eye surface

4. Positive lip biopsy (focus score >>1/4mm2)

5. Oral tests (1 of 3)
Unstimulated salivary flow rate <<0.1 ml/min
Abnormal Parotid sialography
Abnormal salivary scintigraphy

6. Positive Anti SSA and/or SSB or ANA blood test.

As an auto immune, this SJS can attack the mylin as well as the joints, and the mucous production in glands. it can cause chirriosis of the liver, and pancreatitis, as well as inflammed joints, and severe dental disease due to lack of saliva to wash the teeth clean of bacteria.

Still no word yet on if I have primary, or secondary. I just want to wake up and find out this was a dream. That I am 20 again, and have all my life choices to make with the knowledge that I have earned today. boy would I change a few things.

Sending you positive vibes for the best outcome possible. I'm not sure from reading your posts what that would be.

It seem either way, you've got a big challenge that you're facing. Please keep us posted.

Blessings,