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-   -   I need a cheerleader (https://www.neurotalk.org/multiple-sclerosis/48827-cheerleader.html)

lady_express_44 06-28-2008 12:15 AM

Thanks for the explanation.

I am very happy to hear they are keeping a close eye on it, and it does not appear to be a big concern right now. :hug:

July 10th is even sooner. :) You can do it! http://i173.photobucket.com/albums/w...eerleader3.gif

Cherie

starfish 06-28-2008 05:21 PM

So tomorrow, its just 11 days to find out if this is working, because if it is, you can't stop now!! Go go Dejibo!

yeahbut 06-28-2008 06:44 PM

Good Luck - sending great possitive vibes your way! I haven't ever been a cheer leader but I can shout and carry on with the best of them!

Whooo Hoooo! Good Luck!

the Bird 06-28-2008 09:18 PM

Come on Dej! It's ONLY 12 days to the MRI....you can do it! You don't need us to cheer you on!

I'm a C user too! And I just tell people that a bee sting won't ever phase me again!!!

You are a strong woman. You will make the 12 days and then how many more til the doctor sits and talks with you.

You are strong.

hjmom 06-29-2008 09:36 PM

I'm not a medical professional(at all), but when I had my first MRI, I had a huge lesion (active) in a non-typical MS area. There was a lot of confusion by two neurologists on whether or not it was a tumor. They did a Lumbar puncture and saw two o-bands and decided because of that they were going to treat it as MS, gave me steriods and started me on Avonex. My follow up MRI showed the large 'spot' on the first MRI had decreased significantly, so because of that they were satisfied that they had made the correct dx of MS instead of a tumor.

Anyway, I don't know if this differs from glioma, because that wasn't mentioned to me just the possibility that it may be a tumor, but wanted to share in case it may be related. They were discussing the possibility of a bioposy of the 'mri spot', which was really freaking me out. I was thrilled to get my MS dx after that. :eek:

Hang in there! Sending many prayers your way for this difficult time.

Dejibo 07-01-2008 07:23 AM

I go for my eye plugs today! woot! one big goal out of the way and 9 days left till MRI time.


You guys scares me! i asked for some cheerleading about my meds and a way to keep poking till my MRI and everyone jumped onto the OMG she has a glioma band wagon. :mf_swordfight: My Glioma was not the issue. My lack of motivation, and my exhaustion with the whole routine is. I was feeling like I had just reached the I HAVE HAD ENOUGH stage of my run :deadhorse:

I am feeling some better. Thanks for all the attempts at cheerleading.

:Red eyes: now, I am off to get those eye plugs!

PJAMES 07-01-2008 07:34 AM

A good friend would always send me I timely email...

It would just say...Everyday Pete.......

Meaning he was there with me ..Prayers and thoughts everyday.....

Same to you..

MSacorn 07-01-2008 08:20 AM

Quote:

Originally Posted by Dejibo (Post 313201)
I go for my eye plugs today! woot! one big goal out of the way and 9 days left till MRI time.


My lack of motivation, and my exhaustion with the whole routine is. I was feeling like I had just reached the I HAVE HAD ENOUGH stage of my run :deadhorse:

I am feeling some better. Thanks for all the attempts at cheerleading.

:Red eyes: now, I am off to get those eye plugs!

Dejibo
I've got to ask what are eye plugs and what will they do for you?

I got tired of the pain of shooting myself and the side effects were not easing up. I tried 3 of the 4 injectables. I stopped and my doc agreed that the possible payoff wasn't worth my suffering.

Oh, that's bad cheerleading, sorry. I just want you to know you are your best advocate and everything has to feel like the right thing, for You.

:hug:'s

starfish 07-01-2008 11:49 AM

Yeah! Eye plug day! I hope you start feeling the change very soon!

9 more days to go until your MRI and decision about copaxone!!!

Dejibo 07-01-2008 01:59 PM

all plugged up!

Your tear ducts in the bottom corner of your eyes can become dilated, and cause the moisture in your eyes to keep running into your sinus. My eyes are extremely dry! all the drops and gels keep sliding right into my sinus, so they dont stay in the eye to do any good.

I got a training set. they disolve after 4 days or so. They plug them temporarily to make sure your problem is solved. IF it works, they put real plugs in. If not, they plug the top ducts as well.

So far these seem to be doing a nice job! My poor eyes have been so dry, and so irritated that I have been miserable.

so, I have a headache from the drops they used, but other than that. one big step over with.


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