NeuroTalk Support Groups - RR,SP,orPP...who, what, when....

Keri, don't look a gift horse in the mouth ( yeah, like that saying makes sense :rolleyes:) But I am glad you haven't had a reaction.

Since you haven't heard the word "cure" apparently something has been lost in communication along the way or someone has misunderstood - thanks for letting us know.

I am really glad to hear how well your doing and thank you for the updates :hug:

Quote:

Originally Posted by RedPenguins (Post 318657)

PVNS/Chris is staying in the apartment upstairs from me in Baltimore :) (we also shared a nurse over the weekend!) tee hee.

As for Tovaxin, I didn't consider trying it as I couldn't handle the idea of receiving a placebo over real drug. I know that is the point of studies....but I just wasn't able to go there.

However, as I'm doing just "too" well from the chemo, I have joked with the nurses that maybe they gave me a saline solution instead of chemo! :eek: They assure me that is not the case....more likely it's just that I'm some weirdo freak of nature who didn't have any reaction to the chemo. Of course, I'm not out of the woods yet.

Also, just a note - the docs at JH *never* told me this was a cure for MS, nor did I expect to wake up the next day and not have MS. I personally think that is a load of bull - b/c even with cancer, a person doesn't undergo chemo and then the next day be in remission from the cancer. It just don't work that way! Wish it did....but I live in some sort of reality I guess.

BTW, everyone has said I looked better on days 3&4 of the tx than on days 1&2...and I think this is because they also gave me iron infusions. My docs have previously said that I was anemic, etc. - to take iron supplements - which I had - but it never made a dent. Well, I guess when JH kept seeing my blood tests show such low iron, they hooked me up. I sure wish they did that back at home months ago! I think it's made a huge difference.

~Keri