advertisement
Reply
 
Thread Tools Display Modes
Old 07-11-2008, 12:10 PM #11
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Jim has this Kelly. You can't really see it but if you place your hand on the part where it's happening you can feel the jerking. Jim's spinal doctor said it's what RW's doctor said plus the nerve endings. The signal is not being sent correctly which causes the jerking feel. Jim also has clonus and that is more irritating to him because you not only feel it, you see it too. He started taking zanax and that seemed to help. We are currently weening off gaba with no problems. I hope you find something that helps it go away.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt

Last edited by SandyC; 07-11-2008 at 01:38 PM.
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (07-11-2008), weegot5kiz (07-13-2008)

advertisement
Old 07-11-2008, 01:30 PM #12
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default

Quote:
Originally Posted by herekitty1960 View Post
I know....I have a friend with ALS and he has this problem in his arm. It's very noticeable, though. Mine you cannot see but I can feel it.

That was the first thing I thought of, too.

When mine is acting up, you can actually see it through my clothes. It is kind of an amusing party trick now that I know I don't have ALS.
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (07-13-2008), SandyC (07-11-2008)
Old 07-11-2008, 01:39 PM #13
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Quote:
Originally Posted by hollym View Post
When mine is acting up, you can actually see it through my clothes. It is kind of an amusing party trick now that I know I don't have ALS.
Jim does that with his eyes to ammuse others. It's also a great conversation ender when too many questions are being asked.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (07-13-2008), Kitty (07-13-2008)
Old 07-13-2008, 01:59 PM #14
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default

Quote:
Originally Posted by SandyC View Post
Jim does that with his eyes to ammuse others. It's also a great conversation ender when too many questions are being asked.
Can he make his eyes do it at will? I can, too! What a strange talent to have, huh? I could do this about 3 years ago and then it got better and now it is happening again.
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (07-13-2008), SandyC (07-13-2008)
Old 07-13-2008, 02:07 PM #15
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Quote:
Originally Posted by hollym View Post
Can he make his eyes do it at will? I can, too! What a strange talent to have, huh? I could do this about 3 years ago and then it got better and now it is happening again.

Yep he can too!
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (07-13-2008)
Old 07-13-2008, 02:09 PM #16
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Quote:
Originally Posted by hollym View Post
Can he make his eyes do it at will? I can, too! What a strange talent to have, huh? I could do this about 3 years ago and then it got better and now it is happening again.
I was just reading this and now my right eye is twitching....I kid you not..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (07-13-2008), SandyC (07-13-2008), weegot5kiz (07-13-2008)
Old 07-13-2008, 03:31 PM #17
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

yes Kelly i get that too its annoying to say the least, recently i posted about those its like a race track first turn is my rt shoulder then my hand next turn my leg ...... i upped my dosage of klonopin it seems to help some

lately am begining to wonder if the SX are not that bad, tired of all the pills i take

I hope it settles down for you real soon, seemed to me the more stress i had, the more turns there were in the race track, so to say
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (07-13-2008)
Old 07-13-2008, 03:39 PM #18
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by SallyC View Post
I was just reading this and now my right eye is twitching....I kid you not..

Copy cat................
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyC (07-13-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Muscle cramps/twitching/ LizaJane Peripheral Neuropathy 14 07-30-2015 08:00 PM
Muscle spasms/ twitching InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 33 12-15-2009 05:05 PM
Guess I should say hello before Jumping in! SeamsLikeStitches Social Chat 7 06-07-2007 10:29 AM
Jumping In, Saying Howdy! Radioguy Parkinson's Disease 24 02-10-2007 05:23 PM
Muscle twitching??? BJ Bipolar Disorder 4 12-09-2006 09:23 AM


All times are GMT -5. The time now is 08:11 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.