Thanks Kari
I'm eager to hear your updates. And encouraged by your results. I can never hear too much info about HiCy. Keep feeling better and better.

:hug:'s

I'm so excited to see your update. So many people are interested that maybe you should start a blog about it.

There are "other" HiCy blogs out there but you are so good at telling us all these things. How things went, how you're feeling, what has changed.

Something to think about. You wouldn't have to blog every day, just when you wanted to update stuff. Plus, you can look back at it every few months and see the changes.

Good luck,
Weebs

Thanks everyone!

Weeble - I planned on blogging - even have the website address....just need to get it up there. I will try to do that this week - and then you can read detailed about the experience.

Today I just had my first copaxone injection post-HiCy. All I can is OWWWWIE!! I have a boo-boo!

I actually used copax when I was first dx. I used it for 5 or so weeks, then switched to Tysabri. In the beginning the copax didn't bother me - but towards the end, the reactions were big owwies. I've since read a lot of tips on how to deal with these - so we shall see.

Meanwhile, amazing - no owwie when I had chemo - but big owwie from one itsy bitsy little shot!

Today I am going back to work - part time - very part time. I will be wearing my wig - and am very nervous about that. Hope my clients don't freak out. Heck, I hope *I* don't freak out!

Will keep you posted!

~Keri

Keri,

Good luck with everything and I look forward to your blog when you're ready. I also remember those owwies with Copaxone. I always had big ole welts no matter what.

You are stronger than you even know. Keep that in mind.

Best,
Weebs

Keri:

You are a pioneer and an inspiration. Thanks for sharing your experience. Wishing you the best and looking forward to your continued improvement (and your updates).

JJ&LL

Hi Keri,

You "sound" so much more upbeat and undefeated since you've had this treatment. I still remember the months prior . . . and there is a huge difference in "our" Keri. I'm so happy for you, and I wish you continued success. :hug:

Now, what happens if you do not adjust to Copaxone? From what I recall, everyone who goes through HiCy/Revimmue is supposed to hop onto Copaxone after that. There must be some people that don't do well with this med . . . so then what? Will they rx an interferon, or ?

What I find interesting about this approach is that drugs like Tysabri are generally supposed to be recommened for people who do not do well on the standard therapies . . . and there are people like you that were approved for Tysabri on that basis. I know you hadn't tried the CRABs for long anyway, but what you tried included Copaxone, and it didn't "appear" to agree with you. Ironically, now you have to go back on it after Revimmune anyway. :cool:

HiCy/Revimmune is something I would seriously consider if my MS was very aggressive . . . but I wouldn't want to go on Copaxone after that. No offense against Copaxone, I just would (personally) prefer to not use a CRAB on an ongoing basis. How long do you have to stay on it, and what if you find you CAN'T take it?

All the best for continued success.

Cherie