NeuroTalk Support Groups - LDN Information & Check In

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- - LDN Information & Check In (https://www.neurotalk.org/multiple-sclerosis/50240-ldn-information-check.html)

Quote:

Originally Posted by herekitty1960 (Post 326044)

Thanks, Sally. I've been asking my Neuro to prescribe LDN for me but he refuses to do so. I even asked him to just let me try it for a few months - if it didn't help then I would not ask for more. No luck.....:rolleyes:

How long have you been on it? Which of your symptoms did you notice improvement in? How long did it take for you to notice those improvements?

How can I get a script for it? Do I have to go through an on-line pharmacy to get it?

Sorry for all the questions.....it's just that this article was really informative and I would at least like to try it.

Did he give you a rationale for this? I totally understand the skepticism but from what I have read about LDN I don't really think it would be harmful to try it.

I suggest for all interested, to go to the LDN homepage and read and copy all pertinent info and take it to your Doc and make him read it..:D There is absolutely no good reason for any Neuro or PCP to refuse a script for you to try it. :rolleyes:..:mad:

http://www.lowdosenaltrexone.org/

:hug:

I just left a detailed mess for nero the neuro, and he called back and said tomorrow he should have more time to talk about it over the phone, my neuro is pretty cool i even have his cell number incase of serious emergency

prior to this I have read a few other threads about LDN and have been curious, so lets see if he is game, would love to drop 5-6 meds, that would be great

Again a big hug for Sally :hug: and thankl you

Where can I find the naltrexone info site? Thank you very much!

Quote:

Originally Posted by josephwouk (Post 326550)

Hi guys...

Here's the scoop. And it's big.

I spoke this morning with Dr. David Gluck who runs the naltrexone info site. He's 75 years old, though from his voice I thought he was in his mid 40s.

I can only tell you that I was blown away on his depth of kowledge on the subject.

He knows about every study being done everywhere in the world and what the results are showing. Before they are officially published.

What he told me is that LDN is being found to be helpful in all conditions related to a misbehaving imune system.

It has been helpful in conditions ranging from cancer to autism, as well as the more obvious MS and Krohn's.

Most important to me, he told me that it has been effective in stopping Progressive MS.

As a progressive sufferer, I was led to believe that there was no current treatment that had any effect on it.

Given the description of my condition and reaction to the treatment, he was adamant that he believed that my condition was over. All I would have to do is keep taking the LDN.

The only other important drug that is contraindicated for LDN users is opiods. Stopping the LDN for one day before taking opiates eliminates even the possiblity of interactions.

Bottom line folks, today I was given permission to hope for a future again. This is probably the most signifigant day of my life and the consequenses are only now just beginning to sink in.

I'm too overwhelmed at the moment to go into detail, but trust me, when I'm done, EVERY PMS Patient will know about this option. One would be crazy not to give it a try.

It should be the first line of defense for all MS patients and it is currently the ONLY line of defense for Progressives.

Please help me spread the word. Someone else please make a special post with this info.

I'll be back with a lot more later.

Cheers!

Joe

I asked my neuro for the OK to try LDN and my GP prescribed it for me. I am waiting to get some other drugs out of my system before I start LDN so I have a real baseline to judge from.

However, I cannot STAND articles like this that claim a miracle cure for MS and several other diseases. There may be ulterior motives to not promote or research/study LDN, but many people ARE taking it and MOST ARE NOT CURED!! Many have symptom improvement or feel a slowing of progression. I don't care who prints what... if ANYTHING (?perhaps Revimmune?) could guarantee to stop progression, everyone would be on it. Especially with so few potentially dangerous side effects.

I will wait until after my next MRI in Sept and will be starting LDN then...I think:rolleyes:

Quote:

Originally Posted by Millerprof (Post 329164)

Where can I find the naltrexone info site? Thank you very much!

See my reply #22...I put the link there..:)

Quote:

Originally Posted by SallyC (Post 328809)

I agree, I did exactly that, along with the pharmacy information required and my GP said "Why not? You've tried a lot worse than this!"

I like a good, logical attitude.

I'm going to ask my neuro again, when I see her in August. If she won't prescribe, maybe she'll agree to let my PCP. I plan to ask my PCP with or without neuro's Okay.

Should I stop other meds before starting LDN? Are they compatible?

I read somewhere, if you're on an interferon you should stop it first, but what about a chemo med (Imuran)?

How about those for sx relief, such as Baclofen?

Any guidance or others experiences are most welcome and appreciated/

:hug:'s

Quote:

Originally Posted by MSacorn (Post 329229)

Should I stop other meds before starting LDN? Are they compatible?

I read somewhere, if you're on an interferon you should stop it first, but what about a chemo med (Imuran)?

How about those for sx relief, such as Baclofen?

Any guidance or others experiences are most welcome and appreciated/

:hug:'s

As I mentioned previously, until the trial results are announced, they don't know for sure IF the interferons contradict LDN. Up until recently, it was Dr B's thoughts that they might cancel each other out in some way . . . but I do know of some people who found relief from LDN even while on the interferons.

As far as Imuran, I'd ask Skip. I know that people were allowed to continue with LDN in the Tysabri trials . . . but of course that is a whole different drug then Imuran.

Are you on an interferon? Does it not seem to be working for you? Have you considered Copaxone (with LDN) instead?

You can use LDN with any other symptom management drug (except Codeine and Narcotics), but most people I've talked to have found they can drop several of those meds once they start feeling better from the LDN. I dropped antidepressants after starting on LDN, but I still waited about a year to try it and I went through a long and difficult withdrawal from them. I don't take anything but the LDN now (and Naproxen, occasionally).

Cherie

Quote:

Originally Posted by lady_express_44 (Post 329526)

As I mentioned previously, until the trial results are announced, they don't know for sure IF the interferons contradict LDN.

As far as Imuran, I'd ask Skip. I know that people were allowed to continue with LDN in the Tysabri trials . . . but of course that is a whole different drug then Imuran.

Are you on an interferon? Does it not seem to be working for you? Have you considered Copaxone (with LDN) instead?

You can use LDN with any other symptom management drug (except Codeine and Narcotics), but most people I've talked to have found they can drop several of those meds once they start feeling better from the LDN. I dropped antidepressants after starting on LDN, but I still waited about a year to try it and I went through a long and difficult withdrawal from them. I don't take anything but the LDN now (and Naproxen, occasionally).

Cherie

Thanks so much Cherie!
I've tried the A, C, and R meds and we don't get along. That is why I take the Imuran. Not being on it is when I had my worse MS year, 2006.

I'll definitly ask about my meds before stopping them. I was wondering about a/d's as Lexapro has helped me immensely.

:hug:'s