I went ahead and took 4.5 mg. last night. Didn't notice any difference. I hesitated, too, but then just figured if I was going to do it I should just do it....I could wait forever for the "perfect" time! I'm hoping it will help the dizziness......I know it most likely won't but it can't hurt...might help.

WooHoo Kell and Twink..

IF that dizzyness was catching, Kelly, maybe it'll subside, like Twink's..

howdy folks,
i was diagnosed with rrms just a couple months ago and ive been on the LDN for abot 1 month. i cant say enough good things about the LDN and what its done for me. at the end of july when i left the hospital i was on a walker. yesterday i spent 5 hours at work walking un assisted. (i left my cane in the car and deliberatly, too)my fatigue has gotten so much better. im not 100% yet but im getting better every day.or atleast im getting better at it.
i cant guarentee its the naltrexone thats doing it for me or just the natural cource of the MS, but i wouldnt be able to do that with the copaxone either. i just know that things i had lost, ive gotten back and those things keep improving. i know that the naltrexone isnt a magic cure or a silver bullet and its been suggested that im just feeling plecebo effect of the drug. but if its plecebo i dont care. something is making me feel better and i'll take it.
so far the only side effects ive had was one freaky dream.thats it. just the one. and the best thing is that i can afford this medicine.the rest of the drugs they wanted to put me on would have totaled up to thousands of dollars a month. this one.......25$

Hi Ya Flute. Welcome to NeuroTalk and the MS community. It's nice to meet you..

I will be very interested to see how you do with LDN, especially, since you started on it, so early in your disease.

Are you also on Copaxone?

Again, Welcome..

sadly i cant afford the copaxone. its prohibitively expensive for me and unfortunatly my wife makes a good buck so financial aid is out. the lady at walgreens told me a month supply of the copaxone was 2800$ list price.even with our insurance it would still be 1500$ for a 3 month supply. this is america,after all. you can be sick. you can be broke.but its a brave soul who tries to do both at the same time

Flute hello and welcome to Neuro Talk, have you contacted the company to see about co-pay assistance. they do have programs, we can not get public aid but my co pay is covered it use to be shared solutions now i go throguh chronic disease fund I think thats the name, looking for my card I think this is their number at chronic diease fund 1866-781-4997
hope they are able to help you too.

so far the general feeling that we get from everyone we've spoken to is that while we dont make enough money to do it on our own we make too much to ask for help. i have a co worker who has been on the copaxone for the past couple years with help from shared solutions. this year when they applied for aid for 09 they got turned down. they posted too much earnings for their 07 w2's. weve been running into that too.

ok I understand but I would still call and double check, ya never know and try the medicine company themselves, they even have discounted programs too wouldnt hurt to try, worse they can say is no, which leaves you to where you are now, so no loss, if you give em a ring

going through the same thing with Shared Solutions and the Chronic Disease Fund - you're not alone !!!!!

ive been told i could appeal their decission. just to make sure they didnt stop looking when they got to the income numbers.and forgot to take into consideration other expenses like health insurance,co-pays, mortgage, car payment and insurance, student loans, food, credit card bills, utilities, etc etc etc. the squeaky wheel may get the grease but its the wobbly one that gets fixed, eh?