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01-09-2009, 07:37 PM | #821 | |||
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Senior Member
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Well, I'm off Tysabri (I had my last infusion on Nov 17) and starting LDN as soon as Skip's pharmacy ships it to me . I was going to go without any MS med for a while but I changed my mind . I'm really excited and hopeful about LDN. I haven't had a chance to read through this thread yet but I will soon. Wish me luck!
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Multiple Sclerosis-Dx May 2007 . |
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01-09-2009, 09:20 PM | #822 | |||
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Grand Magnate
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Good luck, Joellelee!
I agree that you really don't have anything to lose at this point, if you had no intention of trying another DMD right away anyway. And, if it works for you, you have potentially lots to gain. Did you have trouble getting an rx? Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | Jodylee (01-10-2009) |
01-09-2009, 10:47 PM | #823 | |||
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In Remembrance
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Good Luck Joelle..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Jodylee (01-10-2009) |
01-10-2009, 09:57 AM | #824 | |||
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Senior Member
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Quote:
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Multiple Sclerosis-Dx May 2007 . |
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"Thanks for this!" says: | SallyC (01-10-2009) |
01-10-2009, 11:47 AM | #825 | |||
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Grand Magnate
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Quote:
The neuro's out of our MS Research Center will rx it too . . . but they didn't when I asked 4 yrs ago. Are you starting off with 1.5mg? Do you have any "permanent" symptoms you are hoping to alleviate, or are you trying it mostly to reduce relapses and progression? Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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01-10-2009, 05:43 PM | #826 | |||
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Senior Member
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Quote:
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Multiple Sclerosis-Dx May 2007 . |
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01-10-2009, 06:56 PM | #827 | |||
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Wisest Elder Ever
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It's not selfish to want to feel better! That was one of the first things I noticed after I started taking LDN......the fatigue was nearly gone! I remember the first day I actually felt like doing something I overdid it big time and paid for it the next day but I didn't care....it felt so good to just feel like doing something! I've learned to pace myself but sometimes I still overdo it. I have permanent damage from a really bad flare from a couple of years ago (numb right hand and arm) and it hasn't done anything to relieve that. That would have been a miracle if it had! But, I'm very happy with the results I've had with it.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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01-10-2009, 10:15 PM | #828 | |||
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Member
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Quote:
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. . - DX RRMS 073102; . |
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01-12-2009, 09:14 PM | #830 | |||
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In Remembrance
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I just received an e-mail, from a friend and she is taking 4AP and Kawalawala(sp) with her LDN. She just started, so the reports are not out yet....I'll let you know..
How many people here, boost their LDN with other supplements or meds and does it make things better for you?
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | LarryLDN (01-14-2009) |
Closed Thread |
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