I decided after reading about some successes with LDN that I would pursue it. I made 2 phone calls this morning to 2 neuros and left messages. One is actually gone until next month, so I called the other and just received a call back. (That was FAST!)

He said he doesn't and won't prescribe LDN until double blind studies have proven its effectiveness in pwMS. I should also mention that he has his own Tysabri infusion clinic. Tysabri = $$$. LDN = $0.

I'm not usually a conspiracy theory-type person, but it just makes me wonder, you know?


Now what?

Have you tried your PCP? Also, you could call Skips pharmacy in Fla ( he is the best compounder of LDN, IMO) and ask him to reccommend a Doc, who may do phone appts for scripts of LDN.

http://www.skipspharmacy.com/

I live in Ohio and call a Doc in Penn, every 4 mos., have a phone appt with him and he calls or faxes my script to Skips and they mail it to me. I use my credit card with both.

I also pay for my DD's LDN script, which she gets from her PCP. She has been in total remission since starting LDN, over 3yrs ago...

There will never be the kind of trials on LDN that there have been on the drugs that can make the pharmas billions of $$. I think that is common sense, really. He knows that.

I'd be curious whether he would rx Baclofen, Ritalin, or any of the other "symptom" drugs that we use "off label" . . .? In fact, I bet they've never even double blind tested Wellbutrin on MS.

If there's a will there's a way.

Cherie

Thanks, ladies.

I will call my PCP here in town who likes to throw pills at everything. I'll bet he would prescribe it!

If not, then I will definitely use that link to Skip's Pharmacy.

Thanks so much! I'll keep you posted!

Dangit! The doc won't be back until tomorrow, so the soonest I would hear back is Tues. evening.

His nurse had never heard of it, so I told her to look it up on Wikipedia or the LDN website.

If you get your PCP to write the script, I'd still have them fax it to Skips or give it to you and you can send it to Skips and arrrange for them to send the meds to you. Not everyone knows the proper way to compound LDN.

Good Luck..