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10-18-2008, 03:25 PM | #1 | |||
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Member
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Every summer I vow to try to be more active when the weather gets cooler. This year, thanks to LDN, I’m actually doing it. I do over do it once in a while, but I just can’t stop pushing the envelope. Since I am much more ambulatory I have revisited some long-forgotten aches and pains. For example, I had nearly forgotten that I have a bunion that barks at me when I walk a lot, and my knees have been grumbling at me a bit too. I expect that will be less of a problem after my body gets used to the new and more active me.
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"Thanks for this!" says: | Kitty (10-18-2008), SallyC (10-18-2008), Tree55 (10-20-2008), Twinkletoes (10-18-2008), weegot5kiz (10-18-2008) |
10-18-2008, 05:55 PM | #2 | ||
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Member
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I had tried LDN about 2 years ago for 3 months and I think I felt worse on it although I wasn't feeling too good when I started it. I'm also on Copaxone and have been the past 9 years. I was taking 3.0 mg. I don't remember right now what months I was taking LDN.
Anyhow, what the point of my post is that I'm thinking of trying again. I got a new script from my neuro when I was there on Wednesday. A friend told me that it can take 9 months to a year to notice the full effect of LDN. I also have an MRI of my full spine ordered finally (my first ever MRI of spine ). I get that done November 5th. I've been having pretty bad mid back pain for awhile. Those of you on LDN for a year or longer, how long was it before you really noticed LDN was helping your symptoms? Thanks in advance for replies. My thanks button isn't working still since I got a new laptop last month with Vista on it. |
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"Thanks for this!" says: |
10-18-2008, 06:17 PM | #3 | |||
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Elder Member
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Des as for full effect as usual with ms and meds thats an individual thing, but i cleaned myself up of all my other meds before starting LDN and started at 1.5 and got to say, even though i wasn't sure what did it, but it didnt take me long to feel better I am also on C and the last two days I finally injected with out the auto inject, woo hoo, back to my point with the LDN, it may not be for you who knows maybe opiates effect you differently, but I am glad i did it, I see some things are still there but when i was popping 5 or 6 other pills these SX were still there too, so for me a its a cheaper trade off and a lot less carp a dm going in my system
hello everyone how yall doing fine i hope, dont ask no I didnt over do it this week lol cause I was emmm well i gots fluids in my lungs, doing my meds breathing treatments and taking it easy either it breaks in a few days or in I go I have been here so many times before so eventually if it gets real bad I shall go in. Probably why i wasnt on much i would log on and see all these words and it too much for me this week, soooooo, hopefully I can kick it like I said doing all my meds and breathing treatments roids too and plenty of fluids, i love peeing every 37 minutes lol sorry newcomers dont fret none i am harmless happy weekend folks peace
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . Last edited by weegot5kiz; 10-18-2008 at 07:15 PM. |
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"Thanks for this!" says: | SallyC (10-18-2008), Twinkletoes (10-18-2008) |
10-18-2008, 09:38 PM | #4 | |||
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In Remembrance
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((((((((((Frank)))))))))) You take care of yourself please. I hope you get better without having to go IN..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ Last edited by SallyC; 10-18-2008 at 10:20 PM. |
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"Thanks for this!" says: | weegot5kiz (10-19-2008) |
10-18-2008, 10:04 PM | #5 | |||
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Grand Magnate
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Quote:
Yes, it can take 9 - 12 months to feel the full effects of LDN . . . and not everyone gets symptom management benefit either. Sometimes the symptom benefits are very hard to notice too . . . until you look back to the month or several months prior. The GOAL of using LDN is to slow progression and reduce (even stop) relapses, and most everyone seems to benefit in this regard. I used to have relapses every 3 months, and I have had one in 3 1/2 yrs (due to an untreated infection). Infection and over-doing things (in a BIG way) can still cause relapses, even on LDN. I think it helps to stay connected to people who are using LDN, when you are going to try it. There are "tricks of the trade" which can really help with adjusting to this med (like don't "up" it during Sept/Oct, or how to know if the dosage is right for you, or when to try to up it, etc.). I had a friend walk me through the first several months, and that really helped. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: |
10-18-2008, 11:18 PM | #6 | ||
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Member
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Hi Frank and Cherie,
Thanks for your responses and for the tips, Cherie. I was part of the LDN Yahoo group for a long time prior to going on it last time and for the whole time I was on it. I did write in to the group a bunch of times with questions etc.. but they weren't very nice when you suggested their drug of choice didn't work for you. Right away it had to be something else causing it, whether the filler not a high enough dose, etc. Like I said, I was on 3 mg. I did however, start out the first few days @ 1.5 mg and got my LDN from Skip's in 1.5 mg capsules. I think it can't hurt to try it again, right? I have some left from before, but I suppose it has lost it's effectiveness by now. I'll let yous know when I start it and how I'm doing on it. I'm glad to see how many of you are noticing improvements on it. |
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"Thanks for this!" says: |
10-18-2008, 11:51 PM | #7 | |||
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Grand Magnate
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Quote:
The points they made, about fillers and compounding pharmacies, etc. are legitimate. I don't buy mine from Skip's cause I am in Canada, but I always recommend that others do because I know he is reliable. It sounds like you did all the right things though . . . but it doesn't work for everyone (and/or not necessarily right away) with symptoms. I wasn't expecting any improvement in symptoms, to be honest. I had had MS for about 14 yrs, and had had some pretty bad attacks that left a lot of damage . . . so I thought I was a lost cause. I really just went on it because I had nothing to lose, and I was hoping it would slow progression. I was one of the lucky ones, for sure. One thing I learned, and only recently, is the part about everyone adapting at a different pace. If you go back about 3 or 4 pages on this thread, Sally and I were talking about whether 1.75mg was "enough", and during that research I read that some people might take quite some time to adapt to any increase in dosage above 1.0 mg. I am very sensitive to meds, and only had about 2 weeks of side-effects when I started at 3.0 mg. It seems some people might experience that for several weeks, and I can see how that would be discouraging. That's why I think it might be worthwhile for you to start out at 1.5mg this time, and take it much slower then last. You are on Copaxone anyway, so LDN will just be double-protection, with hopefully some long-term affect on symptoms. No need to rush . . . I understand that Naltrexone has a short shelf-life, something like one year . . . so I agree you should get a fresh batch. Good luck, and take it slow (especially if you have trouble with cold/spasticity). Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: |
10-19-2008, 12:08 PM | #8 | |||
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In Remembrance
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Quote:
I was a member, years ago, of the same group. It's true that there were some gun-ho LDN members there, who made you feel like crap, if you dared to question LDN's Efficacy.. As Cherie said, the stuff about fillers, peeps were allergic to and not using a proper compounding Pharmacy, were and still can be a real problem.....However their people skills left a lot to be desired. I think giving it a new try with your Copaxone is a dandy idea. Give it a little longer, this time and check in here, often. We promise not to holler atcha..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: |
10-20-2008, 11:25 AM | #9 | |||
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In Remembrance
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Frank, how ya doing with the pneumonia?? Any better?
Are you continuing to take your LDN, while Ill? I hope so, unless you are on an opiad for pain.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | lady_express_44 (10-20-2008), Twinkletoes (10-20-2008) |
10-20-2008, 11:30 AM | #10 | |||
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Grand Magnate
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Frank, GET INTO THE HOSPITAL!! Pneumonia is not something to mess around with, especially when we have MS.
Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | SallyC (10-20-2008), Twinkletoes (10-20-2008) |
Closed Thread |
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