[Dejibo]

it has been suggested that I may have Sjorgren's.

My eyes are EXTREMELY dry. my lips are cracked, I have trouble absorbing enough water into my poop, and while my dry mouth isnt severe, it has been documented.

Does anyone else have this ??? Where do I go for answers?

I was using eye gel, and I turned out to be allergic to it. My eyes were all swollen and sore. looked like someone punched me. I am off ALL eye stuff now, except for a steroid cream the MD gave me. I get eye plugs July 1, 08 and I am told they really help.

ok, so I am lost about this disease. Wasnt MS enough? Im miserable!

[Friend2U]

So sorry you are having something else to deal with besides the MS. It just doesn't seem fair. You are in my thoughts and prayers.

[AfterMyNap]

Yuck, that sounds unfun!

With a quick search, I was able to discover a few other members here who have experienced this. You might ask around a bit. I hope you'll figure out how to make it go away.

http://neurotalk.psychcentral.com/se...g_searchinfo=1

[cricket52]

Hi Dejibo:

MS is often accompanied by other autoimmune diseases. Sjorgen's is one of them.


http://www.sjogrenscanada.org/

http://www.mayoclinic.com/health/sjo...ndrome/DS00147

Hope those links help.

[barb02]

I am sorry to hear that you are having to deal with this. Hope the eye plugs help and they can find a solution to your problems. I have been dealind with the dry mouth problem, cracked lips, and dried out nose but figured it was a result of taking several meds and allergies.

[Dejibo]

I have been doing a truck load of research, and I guess its a pretty common syndrome. It can be tested for with ANA tests and IG tests. I know my sed rate is pretty high, and it may explain why I was so quick to go to extremes with my liver function tests. So, it explains alot.

I did order some eye spa stuff. its a set of goggles that you can put hot/cold packs into and it seals out all light, and helps keep moisture in. The eye surgeon told me about them. pricey, but if it works, I dont care.

I am just miserable. I dont have the bad dry mouth, but dang! I would like to be able to open my eyes without feeling like my eyes are gonna turn into dust and blow away.

[Curious]

post on our pn forum.

silverlady and think a few others have sjorgren's.



use the search feature. i know their posts will come up.

[starfish]

I am glad you are getting some good suggestions here to help you sort this out.

As Gilda Radner would say, "Its always something!"

I hope the plugs make a huge improvement for the way your eyes feel.

[Erin524]

Gel drops have a preservative in them that you really should not use more than six times a day.

The artificial tears (non-gel) usually do not have any preservative in them and can be used as much as you want. (always check to make sure there's no preservative)

I had extremely dry eyes last month (allergies) and was using the gel drops until my eye doctor told me to just use artificial tears. (I use Refresh Tears) He also gave me a Rx drop that's for allergies. That's one drop a day and no more.

The gel drops were making my eyelashes and eyelids all crusty and icky. Now I save the gel drops for just before bed. The gel stays in the eyes longer than the artificial tears.

I get thirsty at night really bad, and try to keep a bottle of water nearby.

[Dejibo]

What is PN forum?

Also the eye surgeon pulled me off ALL eye stuff except her steroid cream. My eyes are dramatically better. but still extremely dry.

I just hate that I am now turning into a syndrome collector. I want to collect stamps or money, not diseases.