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08-14-2008, 08:06 PM | #11 | ||
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Junior Member
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Nice to meet you and I am sorry that you have been having such a hard of it I am so wanting some answers right now and just am feeling a bit exasperated I guess. You are right, It could be worse, and there is someone who is always feeling worse then I am and so I am thankful for the health that I have. I will keep everyone updated as it happens. Thank you for your show of support, just really amazes me this forum thing Sincerely, SS |
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08-15-2008, 07:10 AM | #12 | |||
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Elder
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welcome sugar.
the people here will give good advice so I am gonna stay out of that circle. They have a way with words that are so comforting. My question was why did they do that MRI without contrast? That is like the holy grail stuff. while they have you there, boom a touch of dye and we can see active disease. I have seen several neuros do MRI without dye, and I just dont get the logic. I hope you feel better, and get some stability under you soon.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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08-16-2008, 06:03 AM | #13 | |||
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Hi Sugar & Spice and Welcome to the group! Nice to meet ya! There are many friendly, knowledgable fellow MSers here, so feel free to ask questions and vent away!!! I hope you get some answers soon and start to feel better as well.
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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08-16-2008, 07:32 AM | #14 | |||
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Magnate
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Hi S & S - nice to meet you. You have just descibed the last two years of my life basically. The neuro I see now is saying Probable MS because my LP came back normal. I too have all the sx - have had my third flare the end of June, that time I had IV Steroids for three days and then oral for 20. When I went back to see the neuro he looked at me and said because you don't have any health insurance at this time I am going to still not give you a complete dx but you have MS.
It was very hard to hear it but it was nice to have someone look at me and tell what is wrong for sure! You have found a wonderful place, welcome!!
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Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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08-18-2008, 01:24 PM | #15 | |||
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Grand Magnate
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You sure found a good group with the MS people here. Welcome to NT. We're sure glad you found us!
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. . . . . . Bruna - rescued from a Missouri puppy mill |
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08-19-2008, 03:38 AM | #16 | ||
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Junior Member
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Please do not wait for too long if you feel there's something in your body...the longer you wait the more you're making the situation worst!
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"Thanks for this!" says: | Bethsca (09-25-2013) |
09-24-2013, 05:43 AM | #17 | ||
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Junior Member
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MRI showed spinal cord lesions in 2007, told it could be start of MS but DX with TM. Everything stayed weird feeling below left leg, spells of horrible fatigue. Until earlier this year, when I began waking 5-9 times a night to pee, and started with hand tremors. Also a bit less switched on mentally, generally more drained day to day. Would TM cause the tremors, years after initial symptoms (below waist) started? |
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09-25-2013, 05:58 PM | #18 | |||
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Member
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I wish I could read your post but it is not broken up into smaller paragraphs to read easily. My eyes cannot read posts like this one. But welcome to the group.
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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"Thanks for this!" says: | Erika (09-25-2013) |
09-27-2013, 12:35 AM | #19 | |||
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Member
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The original post in this thread from Sugar and Spice is 5 years ago -- and S & S only posted 8 times so not sure if he/she is still around. But it looks like confusedchicca who brought the post back is new. So welcome to NT confusedchicca.
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On Tysabri and love it. . |
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09-30-2013, 10:57 AM | #20 | ||
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Junior Member
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Just wanted to say welcome! I just reintroduced myself yesterday and we have a very similar history re: symptoms. Hope you get to see a good neuro ASAP .
It took years for me to finally get some kind of "official diagnosis". I went through several neuro's before i felt like I was truly being taken care of. |
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