Hi Harry -- Sorry to hear about this. I have had the same problem -- and it was finally dx as Optic Neuritis by my nuero after a VEP (visual evoked Potential) --Has she had one of these? The reason I ask is that my optomotrist and optomologist could find nothing wrong. They Could not see the damage because it was so far back on the nerve. (Even though through their many exams I could actually feel it when they shinned the bright light thiny right on the spot that was damaged).

Is it just one eye or both? With me it was just one eye and it hurt when I looked to the left or right--and the color red was really dull out of that eye.

Mine has repaired itself -- I see pretty well now out of both eyes-athough I am bothered by bright lights and florescents. I do have to wear glare proof, slightly shaded reading glasses.

I am glad they have recommended the seeing devices. Hopefully that will help her. Good luck to you both. Gail

Marg's had 3 different tests and I can't remember the names of them. The last one used a special camera to take detailed pics on the inside of her eye. Haven't got the results back on that one yet.

It's both eyes and that's why at first they weren't too sure that the problem was MS related. But the low vision doc feels strongly that her optic nerves have compensated for years even though nerve damage had occurred but now the nerves just can't handle it anymore.

Hopefully these viewing devices will give her back a little quality of life which she has lost. Just one more thing in the fight against this lousy disease.

Harry

problems too? I have perm. damaged optic nerves due to years of ON attacks. I slept normal until my 1st ON attack, and my sleep is deprived, at best, since then.

In 2004 (think that was the year) the American Board of Optamology participated in a study on people with optic nerve damage and sleep problems. I haven't pulled up the study in a few months, but I googled it in (advance search) line 1) optic nerve damage, 2) american board of optamology (if my mem. serves me).

Let me know, as I feel like the lone wolf in the wilderness out here, experiencing sleelessness due to what I believe to be damaged optic nerves. Thanks

Fortunately Marg has never had sleep problems related to her damaged optic nerves. Her spasms have made up for that in this area

The low vision ophthalmologist has told her that the damage to her optic nerves likely occurred years ago from the MS but the other undamaged nerves have been able to compensate for quite some time. But as usually is the case with MS, the disease progression gets to a point where your nerves can no longer compensate and the problems begin.

The doc told her that there is likely no recovery of the nerves in this situation and she will have this problem for the rest of her life!

Harry