NeuroTalk Support Groups - New MS Drug / Dirucotide?

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- - New MS Drug / Dirucotide? (https://www.neurotalk.org/multiple-sclerosis/52769-ms-drug-dirucotide.html)

Quote:

Originally Posted by CarolM (Post 354079)

Sandy,

The drug works at any level of progression but I believe its main mechanism is stopping progression allowing your body to repair as much as it can. Judy regained a lot of function but still has some deficits. I think the pain relief and getting rid of fatigue were the biggest benefits for her. Regaining bladder control and improving her walking were bonuses.

A man she knows had been in a wheelchair and did manage to walk again but that won't be the same for everyone. One woman was in a hospital bed in the fetal position and regained the use of her arm and was able to be in a wheelchair.

I'm not on any DMD's and have high hopes for this being my drug of choice in the future. Only twice a year and no side effects means a lot when you're a drug and needle-a-phobic!

Carol

Definitely paints the picture of a drug of extreme convenience. Perhaps too this would eventually lessen the number of necessary trips to our neurologists as well :) While we've been hoping on a pill, of course that requires regular routine. This would improve the quality of life for MS'ers so significantly.

Dmplaura, happy dance!!!!!! :Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli:

Carol, thanks for the info. I usually don't get too excited about new drugs in the market but this one does have me a bit tingly, in a good way! :Head-Spin:

Wow, I can't believe I'd never heard of this treatment. It sounds like a miracle! Especially the twice a year thing.....can't get much more convenient than that.

I'm going to keep on researching this drug. Hopefully a trial will be available here in the states before too long.

Kitty, it is already here! In it's third stage!

Quote:

Originally Posted by SandyC (Post 354221)

Kitty, it is already here! In it's third stage!

:Doh: Why did I think that it was in Canada? :confused: I need to read the article again!!! See....I need something for my cognitive health!! :o

Cherie posted a few tidbits in this thread so you don't have to go re-read it. :hug:

I hope it works, because I'm getting so tired of the nightly stab of Copaxone that I've been slacking off a lot the past few weeks.

If all I had to do was go and get an IV two or three times a year, I'd switch to that.

Quote:

Originally Posted by Erin524 (Post 354493)

I told Jim about this today and he's all ready to get his first infusion! :p

The beta is messing with his muscles big time. :(

I'm doing the happy dance with you all. Why that's the best news I've heard in a long time or ever. I'll definitely be waiting impatiently.
:Dancing-Chilli: :Dancing-Chilli:

Quote:

Originally Posted by herekitty1960 (Post 354226)

:Doh: Why did I think that it was in Canada? :confused: I need to read the article again!!! See....I need something for my cognitive health!! :o

Because the Phase II/III study is happening in Canada and Europe for SPMS as well as another study for SPMS in the States. I have been asked by my MS clinic if I would be willing to consider entering this trial. I said yes, but I have a series of tests/ assessments this upcoming month. I'm not really in a position to receive a placebo. If I find out more, I'll let everyone know.

I don't even know if I'm a carrier of the HLA markers required.