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-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   Question for Copaxone users (https://www.neurotalk.org/multiple-sclerosis/53113-question-copaxone-users.html)

Gazelle 08-28-2008 07:22 PM
Quote:
Originally Posted by 0357 (Post 356772)
Sorry, but I cannot answer question; appreciate all the posts on Copaxone for this is the only ABCR drug I'm considering.

I have a MS Rash dx by three MS Specialists; one at Johns Hopkins and two at the MS Clinic in Pittsburgh. A drug I take now controls this rash (not acne) for the most part. I wonder how I will react to Copaxone; I read it can be one of its side effects.

I was told to hang in there for it gets better after the first 6 months. I will try it and hope it works out... Yes, it does have lots of possible side effects IMO Erin.
0357,

Can you do me a favor and explain this "MS rash"? What is it that you're using that controls it? Thanks!

0357 08-28-2008 07:56 PM
Quote:
Originally Posted by Gazelle (Post 356858)
0357,

Can you do me a favor and explain this "MS rash"? What is it that you're using that controls it? Thanks!
It is much like a cold sore starting out in my hairline and face then moving to my neck and chest. I have scars on my chest from this rash. It's funny because I always thought of this rash as such and I noticed in two of my neuro's reports it was described as similar to cold sores.

Trilafon cleared up this rash with a week. My family doctor said he wasn't surprised because of friend of his had a rash and this is the only drug that controlled it.

To my regret this rash is 'starting' to come back even though my Trilafon was increased by 2mg; total 14mg daily. If memory serves me correctly, I started out on 8mg daily.

Erin524 08-28-2008 09:55 PM
Quote:
Originally Posted by 0357 (Post 356870)
It is much like a cold sore starting out in my hairline and face then moving to my neck and chest. I have scars on my chest from this rash. It's funny because I always thought of this rash as such and I noticed in two of my neuro's reports it was described as similar to cold sores.

Trilafon cleared up this rash with a week. My family doctor said he wasn't surprised because of friend of his had a rash and this is the only drug that controlled it.

To my regret this rash is 'starting' to come back even though my Trilafon was increased by 2mg; total 14mg daily. If memory serves me correctly, I started out on 8mg daily.
I wonder if that's the stuff my sister uses. She has some weird skin condition that she's been trying to control. I think they finally found something that I think might be helping her. (of course, she doesnt have MS, so it might be another type of rash)

Gazelle 08-29-2008 05:14 PM
Thanks, 0357. I never heard of that before. Quite interesting!

Sorry to hear, however, that you have this problem. I certainly hope it clears up for you again.

Really appreciate you explaining that for me. :)

adrian 09-05-2008 09:46 AM
Hey Erin,

I had periods of months where I had alot of facial flushing and then lately my hair is very dry and I have noticed alot of hair loss as well.:rolleyes:

Nothing that you mentioned but just wanted to tell you about my symptoms with Copaxone.

Take Care

Adrian :)

GladysD 09-05-2008 12:36 PM
I do find myself getting acne sometimes and my hair is thinning....but....I've always gotten a little acne here and there around 'that time' each month and the hair thinning, I see my GP this week and will discuss that, could be just a reaction to all those babies I had consecutively, lol ;)

If you read the fine print about Copaxone, there is mention to thyroid....always something to get checked out with your GP.

Best of luck....

dmplaura 09-05-2008 01:50 PM
Quote:
Originally Posted by GladysD (Post 362330)
If you read the fine print about Copaxone, there is mention to thyroid....always something to get checked out with your GP.

Best of luck....
Ah ha! I never noticed this in the fine print about C. My neuro (as I have said before) does monthly blood work on me, while on C, and thyroid is one he checks in this.

Every time I go into the clinic to give blood, they ask "Are you on thyroid medication or something?". I have to explain that no, I'm not on thyroid medication. :rolleyes: I am on daily injections of Copaxone for MS. "Ahhhh".

Erin524 09-05-2008 03:33 PM
It does something to your thyroid???

How come my neuro never told me this. (at the time I started Copaxone, I couldnt see well enough to read the fine print)

Maybe I'll make an appointment to see my regular doctor (who is total eye candy... :D ) I wanted to see if I could talk him into a Rx for LDN since the neuro wouldnt give me one.

whispers 09-05-2008 03:52 PM
Try a different shampoo, perhaps?

dmplaura 09-05-2008 06:04 PM
I seem to lose the same amount of hair every time I shower (daily). I didn't really check before I began Copaxone. But now I have a little hair net for the drain, and I always pull the same amount off the net.

I have a lot of hair (it's thick but fine) so I'm not overly worried that I'm going bald, that's for sure.

If I see my part getting wider, well then we have problems!


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