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Old 08-28-2008, 07:22 PM #11
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Originally Posted by 0357 View Post
Sorry, but I cannot answer question; appreciate all the posts on Copaxone for this is the only ABCR drug I'm considering.

I have a MS Rash dx by three MS Specialists; one at Johns Hopkins and two at the MS Clinic in Pittsburgh. A drug I take now controls this rash (not acne) for the most part. I wonder how I will react to Copaxone; I read it can be one of its side effects.

I was told to hang in there for it gets better after the first 6 months. I will try it and hope it works out... Yes, it does have lots of possible side effects IMO Erin.
0357,

Can you do me a favor and explain this "MS rash"? What is it that you're using that controls it? Thanks!
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Old 08-28-2008, 07:56 PM #12
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Originally Posted by Gazelle View Post
0357,

Can you do me a favor and explain this "MS rash"? What is it that you're using that controls it? Thanks!
It is much like a cold sore starting out in my hairline and face then moving to my neck and chest. I have scars on my chest from this rash. It's funny because I always thought of this rash as such and I noticed in two of my neuro's reports it was described as similar to cold sores.

Trilafon cleared up this rash with a week. My family doctor said he wasn't surprised because of friend of his had a rash and this is the only drug that controlled it.

To my regret this rash is 'starting' to come back even though my Trilafon was increased by 2mg; total 14mg daily. If memory serves me correctly, I started out on 8mg daily.
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Old 08-28-2008, 09:55 PM #13
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Quote:
Originally Posted by 0357 View Post
It is much like a cold sore starting out in my hairline and face then moving to my neck and chest. I have scars on my chest from this rash. It's funny because I always thought of this rash as such and I noticed in two of my neuro's reports it was described as similar to cold sores.

Trilafon cleared up this rash with a week. My family doctor said he wasn't surprised because of friend of his had a rash and this is the only drug that controlled it.

To my regret this rash is 'starting' to come back even though my Trilafon was increased by 2mg; total 14mg daily. If memory serves me correctly, I started out on 8mg daily.
I wonder if that's the stuff my sister uses. She has some weird skin condition that she's been trying to control. I think they finally found something that I think might be helping her. (of course, she doesnt have MS, so it might be another type of rash)
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Old 08-29-2008, 05:14 PM #14
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Thanks, 0357. I never heard of that before. Quite interesting!

Sorry to hear, however, that you have this problem. I certainly hope it clears up for you again.

Really appreciate you explaining that for me.
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Old 09-05-2008, 09:46 AM #15
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Hey Erin,

I had periods of months where I had alot of facial flushing and then lately my hair is very dry and I have noticed alot of hair loss as well.

Nothing that you mentioned but just wanted to tell you about my symptoms with Copaxone.

Take Care

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Old 09-05-2008, 12:36 PM #16
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I do find myself getting acne sometimes and my hair is thinning....but....I've always gotten a little acne here and there around 'that time' each month and the hair thinning, I see my GP this week and will discuss that, could be just a reaction to all those babies I had consecutively, lol

If you read the fine print about Copaxone, there is mention to thyroid....always something to get checked out with your GP.

Best of luck....
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Old 09-05-2008, 01:50 PM #17
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If you read the fine print about Copaxone, there is mention to thyroid....always something to get checked out with your GP.

Best of luck....
Ah ha! I never noticed this in the fine print about C. My neuro (as I have said before) does monthly blood work on me, while on C, and thyroid is one he checks in this.

Every time I go into the clinic to give blood, they ask "Are you on thyroid medication or something?". I have to explain that no, I'm not on thyroid medication. I am on daily injections of Copaxone for MS. "Ahhhh".
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Old 09-05-2008, 03:33 PM #18
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It does something to your thyroid???

How come my neuro never told me this. (at the time I started Copaxone, I couldnt see well enough to read the fine print)

Maybe I'll make an appointment to see my regular doctor (who is total eye candy... ) I wanted to see if I could talk him into a Rx for LDN since the neuro wouldnt give me one.
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Old 09-05-2008, 03:52 PM #19
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Try a different shampoo, perhaps?
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Old 09-05-2008, 06:04 PM #20
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I seem to lose the same amount of hair every time I shower (daily). I didn't really check before I began Copaxone. But now I have a little hair net for the drain, and I always pull the same amount off the net.

I have a lot of hair (it's thick but fine) so I'm not overly worried that I'm going bald, that's for sure.

If I see my part getting wider, well then we have problems!
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9/2012 - Relapse - Balance issues 1 sided
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