I know this board is some what neg on HiCy, in spite of this, I want you to know I have passed the 1st stage of acceptance for HiCy. My records are are at J.Hopkins. I have been deemed an excellent canidate. I am currently awaiting a call to fly in and meet with the Drs. Then I will I hope and pray to get in fast.

I do not expect it to be easy - I expect to be very ill for several days. In the end - I do expect a cure for a while. Then I will go again if needed.

I know and neuros back me - I can not with stand another major attack. The 1st one almost took me out. I was lucky, then I got on ty fast. TY is great but it is as a friend said "a patch". It will not last forever and I am tired of being sick from it all the time.

The choice is mine and I made it long ago.

I ask only that u accept my choice and support me as I go into this. I have not made this choice based on info or results for any board member. As I stated, this choice was made long ago. It just took me some time to be sure - act on it - for all records to get to JH...

Hi Sheena - Glad to see your post. I wish you the best of luck with the HiCy and will say some prayers that it works for you.

CONGRATULATIONS, Sheena.

I'm a bit surprised that you are of the impression that the forum is negative on HiCy, and I don't think that is true actually. I know that people tend to be skeptical when a "magic bullet" is touted, but that's only because we have seen that happen, and not pan out, too many times.

Personally, I think HiCy might prove to be a great option, and I wish you all the best.

I hope you, Keri, and whoever else who tries this will keep coming on to tell us the progress you are making, because your input will influence some people to consider this viable option.

Whatever works!

Cherie

That's great Sheena!!! Have you been following RedPenguins?

Good luck Sheena and please keep us posted on your progress!! You've certainly been through a lot and need something positive to help you through this.

Sheena, where did you get the idea this board is negative on HiCY?

We are a supportive group when we are not being belittled or degraded.

(I think you are probably referring to Chrishadms...that's a whole different circumstance and you cannot consider that situation at all!)

YooHoo, Sheena. You go girl!!

Please do, report in often, to tell us of your experience and progress. We are here to support you.

OH, and what Av8rgirl said..

Good for you! Deciding treatment is a tough decision and posts about personal experiences from others whether HiCy, Tysabri, or even a CRAB is very important in making an informed decision. Please do keep us posted as you move forward with treatment, I think there is a lot of interest in the treatment here at NT.

Good luck Sheena! I hope you'll get great results with HiCy.

I don't think there's so much negativity, but maybe a little bit of skepticism or maybe fear of the unknown regarding a new treatment at times. I think we all agree though that we need to have a wide choice of treatments since we all respond differently.

If I needed HiCy treatment, you can be sure I'd take it as well.

Wishing you the very best Sheena.

I know that if I qualified, I'd go there too. It's a big leap, but like you suggested, if your disease has you on a ledge, that's the option left - a big leap.

Please keep us updated. The more posts people see about the process, the more comfortable people will become with hearing about it and understanding the "unknown".

I hope this treatment is a huge success for you.

Sheena,

Anything to fight this monster is worth a try.

I hope that it works wonders for you.

-Vic

You'll be in my prayers, Sheena. Please keep us updated on your progress.