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-   -   "I may have to reverse your diagnosis." (https://www.neurotalk.org/multiple-sclerosis/53661-reverse-diagnosis.html)

marion06095 09-05-2008 03:13 PM

I’ve only been on LDN for a short time (two weeks), but I already have experienced some symptom relief. I hold great hope for future improvements.

Gazelle 09-05-2008 06:13 PM

How do you respond?

"Thanks, doc, let's just see what happens and we can discuss it if/when the time comes." :D

That's AWESOME! I'd love an e-mail like that from a doc. Even sounds like he knows what you've been up to but doesn't want to admit it. ;)

Hope it continues like that for you.


Cherie, I'm not sure that anything less than $20 in chocolate would work per month. :p

lady_express_44 09-05-2008 09:05 PM

Quote:

Originally Posted by Gazelle (Post 362540)
Cherie, I'm not sure that anything less than $20 in chocolate would work per month. :p

True enough . . . and I'd probably put back on the 30lbs I "dropped" once I got on LDN (and off antidepressants) too. :(

Funny enough, LarryLDN swears that chocolate gets his MS symptoms going . . . :confused: But maybe he is just buying the wrong brand, so I'm still awaiting Bill's input on that one.

Cherie

Gazelle 09-05-2008 09:51 PM

I've noticed certain things get my sx going. Too much alcohol does. Smoking pot does. Caffeine can definitely get my body humming (not in a good way). So I wouldn't be surprised if chocolate was a trigger for sx in certain people. :)

lady_express_44 09-05-2008 10:00 PM

Quote:

Originally Posted by Gazelle (Post 362725)
I've noticed certain things get my sx going. Too much alcohol does. Smoking pot does. Caffeine can definitely get my body humming (not in a good way). So I wouldn't be surprised if chocolate was a trigger for sx in certain people. :)

Smoking pot makes me paranoid, so I "think" my symptoms are worse then they are. :Crazy 2: However, before LDN, using pot was the only way I ever slept or ate . . . so I was using it (very sparingly) anyway.

I haven't drank much in over 5 yrs now, and I used to be able to party with the best of them. I can have a few, but anything more than that and I pay for it for the next week. :eek:

I used to be a salt-a-holic, and now I don't care as much about that. I NEVER ate chocolate until the last two years, and now I crave it regularly. I think that has to do with hormones/peri-menopause . . . but it doesn't bother me to eat it. I don't even put on weight when I do . . . and I do often. :)

Cherie

dmplaura 09-05-2008 11:15 PM

Sometimes I think to myself, "Was quitting pot a good idea?". I stopped pretty much after I was through University and was getting into the 'real world' of finding a career. Being 'mature' I guess. Now my mom's almost encouraging the idea of starting it again :p.

I wonder if I would have ever progressed to an MS diagnosis and various symptoms had I continued smoking. Food for thought.

Cherie, I also got pretty paranoid on it. I had to take it in small doses to avoid the paranoia and be very careful about what 'kind' I was smoking. Some types (and for the life of me, I wouldn't be able to recall the names now) just made me paranoid, period.

lady_express_44 09-05-2008 11:48 PM

Quote:

Originally Posted by dmplaura (Post 362756)
Some types (and for the life of me, I wouldn't be able to recall the names now) just made me paranoid, period.

Maui wauie . . . phew!! If the high has anything to do with it's neuroprotective abilities, that stuff ought to cure MS. :D

Cherie

LarryLDN 09-06-2008 12:48 AM

Quote:

Originally Posted by lady_express_44 (Post 362687)
True enough . . . and I'd probably put back on the 30lbs I "dropped" once I got on LDN (and off antidepressants) too. :(

Funny enough, LarryLDN swears that chocolate gets his MS symptoms going . . . :confused: But maybe he is just buying the wrong brand, so I'm still awaiting Bill's input on that one.

Cherie

I tried all sorts of combinations. Chocolate triggers SX for sure. Used to trigger attacks.

Gazelle 09-07-2008 06:59 AM

Quote:

Originally Posted by lady_express_44 (Post 362783)
Maui wauie . . . phew!! If the high has anything to do with it's neuroprotective abilities, that stuff ought to cure MS. :D

Cherie

ROFLMAO!! True. Very, very true!:D

*sigh* Oh I do have fond memories of Acapulco Gold, Maui Wowie (Wauie as you spelled it), Thai stick, hash....... yes, indeed. That was high school, however. Pretty much gave it up when I had kids (2 years out of high school). :cool:

A couple of friends still smoke up and I'll confess to having tried it again just to see what it would do. Man, that stuff is STRONG now!! Yeah, I got high but boy, it magnified my sx and brought some on. So much so that I told my one friend that if I EVER requested a hit again that she was to remove me physically from the room. I'll just sit there and enjoy the smell instead. It's kind of like some pipe tobacco to me--smells good and always did. :o

Quote:

Originally Posted by LarryLDN (Post 362807)
I tried all sorts of combinations. Chocolate triggers SX for sure. Used to trigger attacks.

Talk about MS really messing up your life..... it's bad enough you have to get attacks and deal with sx, but no CHOCOLATE??? THAT is serious enough to have a chat with a neurologist about! :D

SandyC 09-07-2008 10:16 AM

That's awesome SL! I don't know you would respond to that due to lesions coming and going in ms, but overall, the email is promising regarding the use of LDN.

Jim still smokes pot per his doctors orders. He even put him on Marinol to help symptoms in between "tokes" because, you know man, it isn't cheap anymore! It is helping not only his clonus and spasms, but his appetite as well. The only downfall is he is more tired now.

BTW, how are the girls doing?


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