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Old 05-26-2011, 02:35 PM #21
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NurseNancy NurseNancy is offline
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NurseNancy NurseNancy is offline
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wow, i don't know who resurrected this thread but thanks.

all your info is so valuable, i'm printing off the whole thing.
i'm going to ask my dr to recheck my levels of B and D because it hasn't been done in a while.

and, i didn't know about D3.
thank you all very much.
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Old 05-31-2011, 10:50 PM #22
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I take dry, not oily D3 capsules, to avoid soy oil which many are
packaged in. But I do take it with a meal, and most meals have
some fat in them.
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Old 05-31-2011, 10:57 PM #23
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Mrs. D, I am responding here to your stats on B12. Like most people with Polycythemia Vera (my disease #3) I have high B12 readings, usually around 1200. I have a theory that
possibly we don't absorb B12 well, and that's why it's high on blood tests (that is, those with Polycythemia Vera, not MS). I also test high on Omega 3's, although I cannot take
them very well without spastic reaction in the gut. I think I may not absorb them well.
But I am taking small amounts Omega 3 in food, and taking small dose of Alpha Lipoic Acid, which is said to help neuropathy.

My D3 levels went to 85% of normal on just 600 a day. I have increased to 800. As I
explained elsewhere, I don't go above that because D3 is a hormone and might
threaten Porphyria, my Disease #2. I have no proof or stats on that, but I think I went
up pretty well on only 600 D3 a day, and at 800 I am probably normal.
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