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Old 09-12-2008, 02:42 PM #11
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i would just check in with your neuro by phone, especially if your eyes are bothering you.

it could be any # of things. the beginning of a flare, the A not working, some progression or like someone else said, the "normal" ups and downs of MS sx's.
but something tells me it's not that.

your dr may say to wait til your appt, or he might want you to have some tests done before your appt so that he'll have more information for your visit.

please don't put off taking care of yourself. it won't do your kids any good if you do. sometimes fear of the unknown will set us on a path of inaction.
be your own best advocate. take action.
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Old 09-12-2008, 03:47 PM #12
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Ok, good advice. I will call and see what they say.

LA


Quote:
Originally Posted by NurseNancy View Post
i would just check in with your neuro by phone, especially if your eyes are bothering you.

it could be any # of things. the beginning of a flare, the A not working, some progression or like someone else said, the "normal" ups and downs of MS sx's.
but something tells me it's not that.

your dr may say to wait til your appt, or he might want you to have some tests done before your appt so that he'll have more information for your visit.

please don't put off taking care of yourself. it won't do your kids any good if you do. sometimes fear of the unknown will set us on a path of inaction.
be your own best advocate. take action.
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Optic neuritis May 2007 and again January2008
Diagnosed February 13 2008
Started Avonex February 22 2008 (still progressing)
July 2009 started Betaseron.....

"Don't argue with an idiot. People watching may not be able to tell the difference."
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Old 09-12-2008, 06:24 PM #13
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Others have already said what I would do.

I've added watching the correlation to heat and humidity for my SX's. This summer especially, I've noticed increases when it's been really hot or humid out.

Hope the neuro can help you out.
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Old 09-12-2008, 08:54 PM #14
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LA,

My Neuro didn't think it was the Avonex that caused the damage to my thighs. She thought it was the needle but really didn't know because she had never seen both thighs like that. My problem didn't make much sense to her.

I see her Tuesday and will find out what she thinks about Zocor causing the problems.

You probably do need to call you doctor about your new symptoms and see if he can give you something for relief. The Gabapentin has helped me a lot with nerve pain.

Hugs,
Becky

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My skin is ok, it is deep muscle burn. I don't have pain but an intense burn if my muscles are used for more than easy walking.

No UTI that I am aware of. A sniffle here and there but nothing that I would actually call an illness.

I have had some TN pain flaring up at times and that does bother my teeth.

I will take my 31st injection this evening. I know Becky has had a lot of trouble and thought is might be the A at first but I do not have actual pain in my legs, just spasms, burning, and cramping.
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