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Old 09-17-2008, 11:28 PM #1
Oopsalot Oopsalot is offline
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Help Need advice on 16 yr old sons ? symptoms.

I have been noticing that my DS has been having some of the same symptoms that I was trying to deal with way before my dx they have become more pronounced in the last couple of months.

Tremors or shaking of his hands and lately his left leg, he has a slight limp and complains he feels like he is being bitten usually his fingers and arms. I am sure there are other things but he isn't the type to want to complain even when he is so sick he can barely move! WIth him I have always had to guess or make him slow down to give his body a healing start.

I used to be a major multi-tasker just like he tries to be.

I don't let him know I see these things and try not to make a big deal when he does mentions the invisible biting things, even when I see that limp and can tell it bothers him.

I want to be wrong but I also have to know if he might have MS.

Question is how do I talk to his doctor without her thinking I am a paranoid mom?

What's a good way to bring it up?

How would you handle this if it were your child? If you have had to please share how you dealt with it.

I am not hysterical or paranoid I am very concerned.

Thanks in advance.
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Old 09-18-2008, 03:52 AM #2
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Well, given your background with MS I'd ask his PCP to refer him to a Neuro and go from there. Maybe schedule an MRI and see what shows up.

I would be less concerned with what the doctors think of me....if they want to think I'm an hysterical Mom then let them...it's just their personal opinion which doesn't mean much to me. I personally know what MS can do to a person and the earlier it's dx the sooner you can treat it.

As you can probably tell I'm sort of fed up with (some) doctor's and their "holier than thou" attitude...luckily not all are like that. They tend to think that they are the experts....but we have the disease. They could learn a thing or two from us if they'd listen.

Given the sx your son is presenting I'd very politely tell the doctor exactly what testing I wanted done on him and if your insurance requires it a referral to a Neuro.
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Old 09-18-2008, 04:59 AM #3
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I think you could approach the doc the way you told us about it--factually with the comparison to your sx and the fact that your son does not complain.

There's nothing wrong with being concerned for your child. If those fears turn out to be unfounded that's great, but if not, then you acted prudently. And even if they were unfounded, given your personal experience, you acted prudently.

Being hysterical or paranoid as a parent means running to the doc for every little tiny thing and demanding testing. You're NOT doing that. So who cares WHAT a doc might think of you. This is your child's health and that's important and within your right to look after.
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Old 09-18-2008, 06:33 AM #4
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I agree approach doc like you did on here, articulate and with facts, I hope you are able to get DS in for evaluation, hang in there
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Old 09-18-2008, 08:04 AM #5
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Sorry to hear your son is having issues.

I agree with the others about bringing it up calmly. Hoping the docs can help with whatever's going on.
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Old 09-18-2008, 10:05 PM #6
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Thanks so much for understanding.

Having some issues of my own right now with Doc's who have decided they are the Almighty one!

I plan to make an appt for him in the morning.

I feel better now thanks to everyone's validating words and advice.

Take care and stay safe and thanks again!
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