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Cheri how are you faring today??? Sorry you have gone through this nightmare. Rebif??? Was on it and had horrible side effects plus compromised immune problems. Are you off of it??? Hope you see improvement and answers.. Miss you and was wondering where you were. Praying for a recovery. Love and hugs across the US Christine

Grandson now has green pus coming out of his "chickenpox" and is on antibiotics as of yesterday. I don't like this!:confused:

Still on Rebif. Have never had bad reactions to the med (interferon beta 1a) either in the form of Avonex(2 years) or in the 3.5 years I've been on Rebif. Have had three doses since the one that was questioned as being involved in whatever is going on with no increase in temp, pain or rash. In fact, the last of the shingles were gone when I woke this morning....yay Valtrex!

Able to get up and walk around and wait on myself today. Big improvement.

My doc called while I was writing the last sentence. He said that the rest of the labs had come back and showed that I had had parvovirus, cytomegalovirus and Epstein Barr Virus in the past but the infections were not active at the moment. He also said that some of the other tests done showed massive viral and bacterial loads and as long as I continue to improve with the antibiotics, I should be OK. Finishing tomorrow morning. I'll be happy to get off the flagyl and have those awful side effects gone.

It sounds as if things are looking up for you, Cherie. I'm very glad to hear it. Are you still having troubles with your breathing? I hope your recovery continues on this course.

Chris

Trouble breathing? Not nearly as bad. I can walk a few feet or stand at the sink or talk today without severe shortness of breath. It's improving. Thanks.

So, do they know how come you had such a huge viral and bacterial load?

Quote:

Originally Posted by SallyC (Post 34885)

I'm wondering about your Grandson too. Sounds like the Herpes Virus is running rampant....shingles, chicken pox. I'm glad you had some valtrex.

That helped me when I had shingles of the face. The pain was horible, but I have had no residual pain, thanks to Valtrex, I think.

You know, Howard swares by Valtrrex for his MS. He's the only one I know taking it for MS.

So happy to hear that you are having a good day. I hope you have many more to come.:)

Saying a prayer for your Grandson.

Hugs,

Hi SallyC: I take daily Valtrex for the past couple of years to keep my Herpes in suprression. Maybe thats why My MS has done so well?

Quote:

Originally Posted by Cherie (Post 34873)

BBS,
Yes, I had a CT scan of the chest on Wednesday night after the pain began on Tuesday. It was read as "benign". Hopefully the record will be ready for my husband to pick up tomorrow and I can see what they had to say beyond that.

So far today has been overall better than any day in the past two weeks. My daughter just called to say my grandson, who was thought to have chickenpox despite being vaccinated, is draining green pus from some of the sites. My gut tells me these things are somehow connected but I have no clue how. Grandson is on antibiotic as of this afternoon.

Benign. Is that the same as "normal", or "clear"? Tell us when you know more. I've been worried about you.

Also, did you call the Rebif people? The pharmas continue to collect data post marketing.

I'm kind of waiting to get the records from the hospital to get a clearer picture of what they saw before contacting anyone. I don't think it's the Rebif. The PCP and neuro do not think it's the Rebif (although that is not a favorite med for this neuro). At the moment, we are still in the dark as to the causes.

OMG--that is awful. Just shingles alone is unbearable. My, my, I really hope you're feeling better.