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lady_express_44 09-23-2008 04:16 PM

Thanks for the article and update, Cheryl.

I've read some of the conversations going on . . . but I haven't personally researched the results of the trial, or other factors, enough to know what it all might mean yet.

From what I know, I agree with the points you listed in your posting (I don't think you are being unobjective), and I think there are still several other factors to consider too.

Did you find out if you were on the real thing then, during the trial?

I had high hopes for Tovaxin, so I will have to get down to understanding this new information, I guess. :o

Cherie

tovaxin_lab_rat 09-23-2008 04:41 PM

Quote:

Originally Posted by lady_express_44 (Post 374662)
Thanks for the article and update, Cheryl.

I've read some of the conversations going on . . . but I haven't personally researched the results of the trial, or other factors, enough to know what it all might mean yet.

From what I know, I agree with the points you listed in your posting (I don't think you are being unobjective), and I think there are still several other factors to consider too.

Did you find out if you were on the real thing then, during the trial?

I had high hopes for Tovaxin, so I will have to get down to understanding this new information, I guess. :o

Cherie

I won't have any answers until after my appt tomorrow. I am still thinking positive about everything.

Koala77 09-23-2008 10:58 PM

Quote:

Originally Posted by Av8rgirl (Post 374670)
I won't have any answers until after my appt tomorrow. I am still thinking positive about everything.

I also wanted to wish you all the best with your appointment tomorrow FG. I'll be thinking of you. :hug:

Quote:

Originally Posted by Av8rgirl (Post 374670)
You'd think someone had died or there was some deadly side affect attached to this trial drug! Geez...I am tired of people who are not in this trial cramming their drug or their choice down my throat and condemning me for my choice......

I was a guinea pig many years ago (late 1970's) when Interferons were first being trialled, so I have some idea of what you're going through for the ultimate benefit for us all.

What I don't understand is how anyone could be negative about what you're doing. Don't people realise that without the likes of yourself, myself and many others like us involved in these trials, there wouldn't have any medications for MSers to choose from? There would be no advances in those we already have.

Although it's unlikely that I'll be taking Tovaxin when the trials are finished, I still want to thank you for your part in a trial that stands to benefit many thousands of MSers around the world.

RedPenguins 09-24-2008 12:06 AM

Good luck, Cheryl
 
Cheryl -

My thoughts will be with you on Wednesday - and hope that the appointment exceed all of our positive thoughts heading your way :)

I am curious to know if they will disclose to you if you were on placebo or real drug....and will they give you the MRI results? Oy, that would kill me - just not knowing!! I wanna see my brain!

I also agree - less IVSM = VERY good! Can't complain about that.

Keep us posted!!

~Keri

tovaxin_lab_rat 09-24-2008 09:28 AM

Quote:

Originally Posted by RedPenguins (Post 374983)
Cheryl -

My thoughts will be with you on Wednesday - and hope that the appointment exceed all of our positive thoughts heading your way :)

I am curious to know if they will disclose to you if you were on placebo or real drug....and will they give you the MRI results? Oy, that would kill me - just not knowing!! I wanna see my brain!

I also agree - less IVSM = VERY good! Can't complain about that.

Keep us posted!!

~Keri

I want to know as well Keri! I am hoping to get SOME answers today! But I just don't know what I will find out today. But I will let you all know. One poster said that he/she was already told but I have little faith in anything that poster has said...

I agree, less IVSM = very good! I have had a lot of IVSM since I've been diagnosed. Even ONE less relapse a year is good for me.

I listened to the conference call on the Opexa site last night and found a lot of the information very good. They focused on the annualized relapse rate of the Tovaxin group with the higher lesion load vs the annualized relapse rate in the place placebo group with a much lighter lesion load and the stats were put in a better perspective. The Tovaxin group had a might higher disability rate to overcome and it just happened to be coincidence. So, I am focusing on that and not some hocus pocus that these investors/non-trial participants are saying. These are the people I want (maybe others too) want to shoot. But that's me.

I know how *I* am doing so we shall see what happens. Moving forward, thinking positive.

Thanks for all the support everyone. It's been a rough year and a half.

tovaxin_lab_rat 09-24-2008 05:30 PM

We have not been unblinded yet by the Study. All the data has not been correlated to the point where each patient can be identified. As soon as that happens, we will be contacted and told as much information as is available.

I got enough questions answered today that I am satisfied with the presentation at World Congress regarding the Phase IIb trial results and hopefully there will be funding forthcoming to continue the rest of the trials.

I am to see my opthamologist for an eye exam, again, and see what he has to say.

Now I wait for the results of the blood draw today, should be 2 weeks or less.

SallyC 09-24-2008 05:35 PM

Good Luck, Cheryl..:hug:

tovaxin_lab_rat 09-24-2008 05:42 PM

Quote:

Originally Posted by SallyC (Post 375674)
Good Luck, Cheryl..:hug:

Thanks Sally. ;)

Natalie8 09-25-2008 01:25 AM

Quote:

Originally Posted by Av8rgirl (Post 375669)
We have not been unblinded yet by the Study. All the data has not been correlated to the point where each patient can be identified. As soon as that happens, we will be contacted and told as much information as is available.

I got enough questions answered today that I am satisfied with the presentation at World Congress regarding the Phase IIb trial results and hopefully there will be funding forthcoming to continue the rest of the trials.

I am to see my opthamologist for an eye exam, again, and see what he has to say.

Now I wait for the results of the blood draw today, should be 2 weeks or less.

Cheryl, you couldn't find out about your own data today? Darn! I'll keep my fingers crossed for you and the blood draw. :hug:

tovaxin_lab_rat 09-25-2008 01:00 PM

Quote:

Originally Posted by Natalie8 (Post 375983)
Cheryl, you couldn't find out about your own data today? Darn! I'll keep my fingers crossed for you and the blood draw. :hug:

No, it's not available to anyone yet, including the trial site coordinators. It has not been released. As soon as it is, we will all be notified!

:D


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