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Old 09-23-2008, 04:16 PM #11
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Thanks for the article and update, Cheryl.

I've read some of the conversations going on . . . but I haven't personally researched the results of the trial, or other factors, enough to know what it all might mean yet.

From what I know, I agree with the points you listed in your posting (I don't think you are being unobjective), and I think there are still several other factors to consider too.

Did you find out if you were on the real thing then, during the trial?

I had high hopes for Tovaxin, so I will have to get down to understanding this new information, I guess.

Cherie
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Old 09-23-2008, 04:41 PM #12
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Quote:
Originally Posted by lady_express_44 View Post
Thanks for the article and update, Cheryl.

I've read some of the conversations going on . . . but I haven't personally researched the results of the trial, or other factors, enough to know what it all might mean yet.

From what I know, I agree with the points you listed in your posting (I don't think you are being unobjective), and I think there are still several other factors to consider too.

Did you find out if you were on the real thing then, during the trial?

I had high hopes for Tovaxin, so I will have to get down to understanding this new information, I guess.

Cherie
I won't have any answers until after my appt tomorrow. I am still thinking positive about everything.
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Old 09-23-2008, 10:58 PM #13
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Quote:
Originally Posted by Av8rgirl View Post
I won't have any answers until after my appt tomorrow. I am still thinking positive about everything.
I also wanted to wish you all the best with your appointment tomorrow FG. I'll be thinking of you.

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You'd think someone had died or there was some deadly side affect attached to this trial drug! Geez...I am tired of people who are not in this trial cramming their drug or their choice down my throat and condemning me for my choice......
I was a guinea pig many years ago (late 1970's) when Interferons were first being trialled, so I have some idea of what you're going through for the ultimate benefit for us all.

What I don't understand is how anyone could be negative about what you're doing. Don't people realise that without the likes of yourself, myself and many others like us involved in these trials, there wouldn't have any medications for MSers to choose from? There would be no advances in those we already have.

Although it's unlikely that I'll be taking Tovaxin when the trials are finished, I still want to thank you for your part in a trial that stands to benefit many thousands of MSers around the world.
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Old 09-24-2008, 12:06 AM #14
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Default Good luck, Cheryl

Cheryl -

My thoughts will be with you on Wednesday - and hope that the appointment exceed all of our positive thoughts heading your way

I am curious to know if they will disclose to you if you were on placebo or real drug....and will they give you the MRI results? Oy, that would kill me - just not knowing!! I wanna see my brain!

I also agree - less IVSM = VERY good! Can't complain about that.

Keep us posted!!

~Keri
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Old 09-24-2008, 09:28 AM #15
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Cheryl -

My thoughts will be with you on Wednesday - and hope that the appointment exceed all of our positive thoughts heading your way

I am curious to know if they will disclose to you if you were on placebo or real drug....and will they give you the MRI results? Oy, that would kill me - just not knowing!! I wanna see my brain!

I also agree - less IVSM = VERY good! Can't complain about that.

Keep us posted!!

~Keri
I want to know as well Keri! I am hoping to get SOME answers today! But I just don't know what I will find out today. But I will let you all know. One poster said that he/she was already told but I have little faith in anything that poster has said...

I agree, less IVSM = very good! I have had a lot of IVSM since I've been diagnosed. Even ONE less relapse a year is good for me.

I listened to the conference call on the Opexa site last night and found a lot of the information very good. They focused on the annualized relapse rate of the Tovaxin group with the higher lesion load vs the annualized relapse rate in the place placebo group with a much lighter lesion load and the stats were put in a better perspective. The Tovaxin group had a might higher disability rate to overcome and it just happened to be coincidence. So, I am focusing on that and not some hocus pocus that these investors/non-trial participants are saying. These are the people I want (maybe others too) want to shoot. But that's me.

I know how *I* am doing so we shall see what happens. Moving forward, thinking positive.

Thanks for all the support everyone. It's been a rough year and a half.
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Old 09-24-2008, 05:30 PM #16
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We have not been unblinded yet by the Study. All the data has not been correlated to the point where each patient can be identified. As soon as that happens, we will be contacted and told as much information as is available.

I got enough questions answered today that I am satisfied with the presentation at World Congress regarding the Phase IIb trial results and hopefully there will be funding forthcoming to continue the rest of the trials.

I am to see my opthamologist for an eye exam, again, and see what he has to say.

Now I wait for the results of the blood draw today, should be 2 weeks or less.
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Old 09-24-2008, 05:35 PM #17
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Good Luck, Cheryl..
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Old 09-24-2008, 05:42 PM #18
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Good Luck, Cheryl..
Thanks Sally.
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Old 09-25-2008, 01:25 AM #19
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Quote:
Originally Posted by Av8rgirl View Post
We have not been unblinded yet by the Study. All the data has not been correlated to the point where each patient can be identified. As soon as that happens, we will be contacted and told as much information as is available.

I got enough questions answered today that I am satisfied with the presentation at World Congress regarding the Phase IIb trial results and hopefully there will be funding forthcoming to continue the rest of the trials.

I am to see my opthamologist for an eye exam, again, and see what he has to say.

Now I wait for the results of the blood draw today, should be 2 weeks or less.
Cheryl, you couldn't find out about your own data today? Darn! I'll keep my fingers crossed for you and the blood draw.
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Old 09-25-2008, 01:00 PM #20
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Cheryl, you couldn't find out about your own data today? Darn! I'll keep my fingers crossed for you and the blood draw.
No, it's not available to anyone yet, including the trial site coordinators. It has not been released. As soon as it is, we will all be notified!

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