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09-26-2008, 08:29 AM | #21 | |||
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Magnate
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I listened to the conference call too, and I found a lot of positives in the data. Let's hope you get the news soon and that you make those MRTCs this time!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | ewizabeth (09-26-2008), tovaxin_lab_rat (09-26-2008) |
09-26-2008, 09:24 AM | #22 | |||
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Grand Magnate
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From what I understand so far about the trial, the results were viewed as not nearly as positive (as some people might have expected) in terms of relapse rates. They "expected" the Placebo arm to have annual relapse rates somewhere around .8 (similar to the initial CRAB trials):
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I think they should at least be able to take an "average" from the other trials, as obviously something went wrong here. From what I gathered of the conference call, they think this happened because although everyone from both arms had a similar relapse history . . . they inadvertantly put the people with the most disease activity (number of active lesions at the start of the trial) in the treatment arm of the trial, and the one's with the least in the Placebo arm. Seems like perhaps a silly mistake to make, but if it's true (or they had instead mistakingly put the "active disease participants" in the placebo arm), we certainly would have "appeared" to get entirely different results. (Not that I think relapse rates are the end-all, be-all for evaluating the efficacy of these drugs anyway, but it is one of the current secondary measures . . . ) Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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09-26-2008, 10:33 AM | #23 | |||
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In Remembrance
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I know who HE is, Cheryl... I went over there and read a bit and laughed my head off. Don't let any big mouth know it all, know nothings, P you O. Certain tranparency and stupidity loom large, in certain places, by certain people..
Good for you for keeping your cool...you're a better person for it.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | ewizabeth (09-29-2008), tovaxin_lab_rat (09-26-2008) |
09-26-2008, 12:35 PM | #24 | |||
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Elder
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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09-26-2008, 09:54 PM | #25 | |||
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Magnate
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Ok....what?
I have to go back and read this again. Give me time here.....
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09-26-2008, 09:56 PM | #26 | |||
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Elder
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I've heard that many of the trial patients have been unblinded today. I never got a call....
Cherie, have you heard from Sweetyhide???
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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09-27-2008, 05:36 AM | #27 | |||
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Grand Magnate
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Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | ewizabeth (09-27-2008), tovaxin_lab_rat (09-27-2008) |
09-27-2008, 01:05 PM | #28 | |||
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Elder
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I've not heard from my site coordinator, I guess the unblinding results are slow moving West Ohio, Kentucky and Alabama people have checked in that they've heard. Oh well, whatever!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | ewizabeth (09-27-2008) |
09-29-2008, 01:47 PM | #29 | |||
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Junior Member
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But my issues are un-ms-related - for a change! Cheryl I called my coordinator and told her to find out. She did and called me back. I was on the placebo. Yes I did remarkably well - overall. Glad of that. edited to add: Just got a call from my coordinator and they dont have to reschedule me (because of storm). My vaccine is made and I get it tomorrow! I am sticking to Tovaxin as long as they will have me. My faith in my decision hasn't changed. Good luck to you too!
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. ~Sweety Peace, Love and Potato Salad. Last edited by Sweetyhide; 09-29-2008 at 02:02 PM. Reason: more info |
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"Thanks for this!" says: | ewizabeth (09-29-2008), Koala77 (09-30-2008), Riverwild (09-29-2008), SallyC (09-29-2008), tovaxin_lab_rat (09-29-2008) |
09-29-2008, 10:09 PM | #30 | |||
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Elder
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I am glad you are sticking with the trial. I will too, if I get back in! I am waiting for the results of the last MRTC blood draw.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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