I'm curious who has been diagnosed with MS but has no lesions visable on the MRI? However have other symptoms?

Thanks

Hi Patch,

I have not had an "official" dx but my neuro feels I have MS. I have had numerous MRI's only one showed 2 small lesions on my neck which were discribed on the report as "aging lesions" and the next time it was done 6 months later they were gone. One LP, which was clear also.

With my sx (changing daily now), 3rd flare and round of Steroids since April my Neuro is fully convinced MS.

so, to answer your question - No I haven't had an "official" dx but yes I have been told it is MS by two different Neuro's.

http://www.mult-sclerosis.org/DiagnosticCriteria.html

Just an FYI on how the diagnostic procedure is supposed to work for diagnosing MS.

Thanks for the info. One more question have any of you noticed when sleeping your awaken by a twitch in your body. LIke I would be sound asleep and my body jumps, its really wierd. Almost like having a bad dream but I don't feel that I am.

5% of people with MS have no lesions. Go to the National MS Society's main page and search MRI...

Take care.

http://www.nationalmssociety.org/abo...-ms/index.aspx

Here's the link to the reference.

Actually, that happens to me alot, almost like my body has some how lost it's balance even though I'm asleep. Hard to put into words, but I do know what you mean!

I was told I had MS in 1988 - without an MRI. I spent 16 months on a waiting list for an MRI. The 1989 MRI showed 3 lesions.

My 1994 MRI had only 1 lesion. My 1993 MRI showed 4 lesions. My 2003 MRI showed dozens of lesions. I got a stack of MRI films...

Lesions come, go, swim around, grow, shrink, fade away, disappear, etc. I got tired of trying to predict the course of my MS based on lesions. It is not possible.

There is a school of thought that the body may go through a re-myelination process on its own accord. I believe it.

Tom