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#11 | |||
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Grand Magnate
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I have only noticed the increased sense of smell when I had a major flare. But overall, chemical (cleaning supplies), paint, and perfumes, and flowery scents bother me on a daily basis.
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"Thanks for this!" says: | dmplaura (10-20-2008) |
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#12 | |||
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Magnate
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Hrm, maybe I'm in a 'flare' of sorts with this sensory pain then. I see my family doctor this week, I'll mention it to her. Neuro is in November...
I've only really got Clonazepam to take currently to control this pain, and it does help a bit, but I wish I could find an anti convulsant that I don't poorly react to that would help.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#13 | |||
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Grand Magnate
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I get that "funky smell" symptom on an adhoc basis, and not necessarily when I am in an attack. It usually lasts a week or two, and I most often smell boiling beef bones or smoke (usually electrical "fire").
Whatever is causing this burning for you, Laura & Barb, is probably the same thing that causes the tingling in my cheek and numbness in my mouth. It's just a different sensation. From what I recall, it's perhaps from a lesion in the brainstem, where there are 12 cranial nerves, including the TN one. I only know of 2 spinal cord and 3 brain lesions that I have . . . but that doesn't mean there aren't more that I am not aware of. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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#14 | |||
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Magnate
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When I get burning, it might be the bottoms of my feet, my neck or lower back. Those spots are not killer painful, but not pleasant. Or my left leg - which is killer painful. The broiler thing is right on target. For that the only thing that works is 50 mgs of amitriptyline.
The only times I've had the heightened smell sx, both times I was pregnant. ![]()
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Anybody who doesn't think a dog can smile has never dropped a piece of bacon. |
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#15 | |||
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Magnate
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Well, maybe I'm pregnant?
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__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#16 | |||
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Senior Member
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HA! You mentioned abstinence before. Hmm...... Immaculate Conception?
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A Hairy Chicken Is Better Than A Hairy Hand! |
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"Thanks for this!" says: | dmplaura (10-22-2008) |
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#17 | |||
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Magnate
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I have reason to question it though Gaztastic LOL. I met me a man this past weekend and had a wonderful time. Gamers are such cuties
![]() I was a good girl and 'played safe' LOL... so I highly doubt there will be any surprises, but you never do know, right? ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Gazelle (10-22-2008) |
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