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Old 10-20-2008, 07:43 PM #41
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Originally Posted by Taffy View Post
Please no wallpapering!

Oh.. Shappy, what is HRH?
Her Royal Highness!!!

I promise no wallpapering! I can't climb on the ladder anyway!
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Old 10-20-2008, 08:34 PM #42
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Please no wallpapering!

But she's so much FUN when she wallpapers. (And maybe she can't climb ladders but we knew THAT! )
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Old 10-20-2008, 09:25 PM #43
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i hope the med helps.
what about the bruising?
it may be a little late on the advice but try icing it.
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Old 10-20-2008, 09:28 PM #44
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i hope the med helps.
what about the bruising?
it may be a little late on the advice but try icing it.
Doc has me wrapping my leg is warm moist towels and keeping it elevated. Feels better.

We shall see what my neuro says tomorrow morning.
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Old 10-20-2008, 09:45 PM #45
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Please no wallpapering!

Oh.. Shappy, what is HRH?
Ah, thank you FG!

But, what do you call a royal whiner?
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Old 10-21-2008, 12:43 PM #46
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Cheryl, please let us know what the neuro says today.
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Old 10-21-2008, 12:53 PM #47
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Cheryl, please let us know what the neuro says today.

I just got home from seeing my neuro. After a thorough neuro examination she wants to start me on 3 days IVSM. She also wants to add quinine to help with the spasms. It has worked for me in the past before it was pulled from the market. There's a new formulation on the market now and you have to watch the platelet count, but evidently its a safer form.

Of course, that has to be cleared by you-know-who. She is going to call him and have a chat with him not only about the IVSM, but adding quinine as well as asking him about my MRIs. If he won't share, then she is going to ask him if she can order one anyway.

The fun begins. I may be out of the study. At this point, the decision is do I treat this relapse and stay in the study, treat the relapse and get kicked. Treat the relapse and get information or what...I want to stay in the study, get treated, and get information. So, let's see what happens. She said she would call him today and let me know and if I don't hear back from her in 2 days, to call her back...she's on call for the rest of the week.

This being caught in the middle stuff sucks.
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Old 10-21-2008, 12:54 PM #48
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Quote:
Originally Posted by Taffy View Post
Ah, thank you FG!

But, what do you call a royal whiner?
Ignore them....
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Old 10-21-2008, 01:09 PM #49
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Thanks for the update Cheryl. I hope it gets approved for you!
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Old 10-21-2008, 01:23 PM #50
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Quote:
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Thanks for the update Cheryl. I hope it gets approved for you!
I will keep you posted. Not sure I want steroids. We shall see how things go over the next couple of days.

But, neuro exam did not go well. No balance, could not walk on toes or heels. Could not feel the tuning fork on big toes. No reflexes in knees, heels, arms. Fingers and palms of hands are now numb. And of course, there's this right leg issue...tight as a board. Walking is fun! NOT...

Hmmm....I am thinking I have MS right now!
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