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10-27-2008, 04:36 PM | #21 | |||
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Best to ask. Last thing I want to see is a smoke-free, crabby, sleepless, spotty mouth Dimpled One who's burning up.
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03-19-2009, 06:26 PM | #22 | ||
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Hi everyone, This is my first time posting, I sure hope someone can help me. I have a burning, tingling, metal taste in my mouth and my tongue just feels weird, I want to loose my mind, I have been to several doctors and they never help, tried different drugs no luck, been to a taste and smell doctor nothing. I am thinking it is a neropathy, does this sound familiar to anyone. I need help before I loose it. Thanks |
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03-19-2009, 07:27 PM | #23 | |||
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Magnate
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I was on effexor a long time ago. Mine wasn't for pain though it was the so called bi-polar my GP decided I had. He combined the effexor, amitryp, zoloft and something else. None of which really worked to treat the post partum depression I was having. But it seemed like it made all of the other meds stronger, and brought out all of the bad side effects of all of them.
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03-20-2009, 12:10 PM | #24 | |||
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Magnate
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Quote:
what your's sounds like is burning mouth syndrome, but it could be Sjorgens (if I'm spelling that right) syndrome... there's a few different disorders causing burning/tingling or dry mouth. Getting a doctor to understand it is a true test in beating your head against a proverbial wall and seeing how much you can take. Mine still doesn't 'get' it. She just finally agreed to prescribe me Clonazepam, after I tried a bunch of other stuff that didn't work (antidepressants, anticonvulsants). Welcome to NeuroTalk! You'll find a lot of useful info and support here!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (03-20-2009) |
12-04-2013, 03:57 PM | #25 | ||
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Quote:
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12-04-2013, 04:13 PM | #26 | ||
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New Member
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Hi, I had a flaire that produced a metal taste in my mouth 17 years ago almost now before I was diagnosed with sjorgrens...of course,the drs didn't take me seriously..however, I kept a diary of they symptoms and still have that diary.These past years I developed the burning mouth thing to extreme which, eventually, bounced me from dr to dr draining my financial resources until I ended up at Tufts University where I finally was tested properly. I take salagen twice a day and that has resolved much of the burning mouth unless I get real tired and stressed.I also had terrible fungal infections in my mouth and on my lips for months and was given a med that worked great for that. I was improved in just about two weeks from that flair. The metal taste really stood out,though.
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12-06-2013, 06:29 AM | #27 | |||
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Hi Laura
I am sorry that you are going through such a hard time at the moment. I am taking Dothiapen (which is a tricyclic antidepressant) and also Topamax (which is an anti-epileptic) to help me handle burning legs/feet and reduce the number of falls that I was having. So far, it is working pretty well, with my legs still burning but not near as much as they were before I started the meds, and no more falls in the last few months. I think they both work, but on different systems - and together I seem to have much less problems. Take care, and listen to your body, but don't forget that many meds take a while to become effective and to lose the initial side-effects - I know I had lots of tingling a quite a few sleepless nights until it all settled down. I hope that it has the same benefits for you if you stick to it.
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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