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-   -   Lots of questions (https://www.neurotalk.org/multiple-sclerosis/58271-lots-questions.html)

weegot5kiz 11-06-2008 07:01 AM

Brenda I start LDN on 8-8-8, I say if you can avoid any med do so regardless of what it is, but thats me I allowed docs to test and prod me and pump me full of pills for first year and half, then informed my doc i dont want a ton of pills to take two, sometimes three times a day, I would like to keep my liver thank you very much.. and I approached him in a semi whimsical and thoroughly thought out position, and he has worked with me ever since regarding my distaste for pills, and yes I understand sometimes pills is what is needed, but if I can by adapting ignoring and possible natural remedies(i dont mess with these too much, yeah and ive got a bridge in brooklyn for sale)

but if I can get away with not taking excess of pills then coolie ohs to me, you keep edumacating :rolleyes:yourself and you will be fine, information is a good allie

legzzalot 11-06-2008 10:25 AM

Will do. And sorry guys I totally meant to send that last one as a PM. But seriously how does dairy effect MS?

lady_express_44 11-06-2008 02:24 PM

We don't know if dairy affects MS, but some people have theorized that it MS is caused by "leaky gut", and suggest we stay away from dairy.

I am allergic (or maybe just sensitive) to either a protein or the calcium (can't remember) in dairy. I had several health issues that pointed directly at the necessity to avoid dairy, so I mostly cut it out about 30 yrs ago. The only time I consumed a significant amount of dairy after that was when I lived on a farm in New Zealand . . . and within a month of arriving back home, I had my first serious MS attack. :cool:

If dairy does have anything to do with MS, it may be the reason that I am still relatively ok after 18 definite years (possibly 30+) with MS.

There is more information about dairy and MS in the theory behind the "Swank Diet", which some people try to follow to manage this disease.

Cherie

lady_express_44 11-06-2008 02:48 PM

Quote:

Originally Posted by legzzalot (Post 402991)
He did tell me there is a drug in pill form that is in the final stages of FDA testing and would hopefully be on the market in the next 2 to 3 years that has been shown to reduce relapses by over 60% could this be LDN?

No, there are several oral meds that are currently undergoing large clinical trials for MS, including; FTY720, Trimesta (oral Estriol), BG00012 (also called BG-12 or dimethyl fumarate), MN-166 (phosphodiesterase inhibitor used for asthma), Cladribine, Laquinimod (or probably others I am forgetting) . . . Which one is boasting a 60% reduction in relapses, I'm not sure . . . maybe FTY720. :confused:

In the meantime, there is plenty of research going on to determine what causes the damage in MS . . . so by the time they get to market, maybe "reducing relapses" might not be considered the "right" thing to do. :cool: There is already some research indicating this theory ...

Quote:

Originally Posted by mom2five (Post 403021)
I am curious about this...can you ask when you go and then let all of us know? I actually have mixed feelings about LDN getting FDA approval, because I worry that it will drive the price up. From what I understand, right now it can be obtained for anywhere from $10-$40/month. I don't want to see that change and worry that it might.

Man! Am I suspicious of pharmaceutical companies, or what?! :rolleyes:

It is highly unlikely it will EVER get FDA approval for MS . . . so I don't think you need to worry about the cost going up any time soon. The type of trials that are needed to prove efficacy for disease progression will NEVER happen, simply due to cost & profitability on the drug.

The small trials they have done, or would like to do, are to prove its efficacy as a symptom management drug. Those trials are not nearly as expensive and if they prove its effectiveness for symptoms . . . people will get the added BONUS of no progression with the disease. :D:D:D

Cherie


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