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Old 10-22-2008, 10:24 AM #1
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Default Spms
How many of us have SPMS - our ages - our medications ??
Last edited by KarenMarie; 10-22-2008 at 10:28 AM. Reason: Capital letters
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Old 10-22-2008, 10:29 AM #2
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OK - couldn't go back and capitalize - sorry !!
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Old 10-22-2008, 11:05 AM #3
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Jim is spms and has been for 15 years. He takes so many meds it's crazy! He takes baclofen, tizanidine, sinemet for muscle spasms, methadone for pain, zocor for cholesterol, zoloft for Beta side effects, zanax for tremors, macrobid for recurrent UTI's, oxybutinin for bladder spasms, and Beta Interferon.
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Old 10-22-2008, 12:25 PM #4
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I am SPMS, and I am treating with, and having good symptom relief with LDN. My MRIs have been stable for quite a few years. I am 61.
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Old 10-22-2008, 12:32 PM #5
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I forgot to mention Jim is 42 and has had ms for 20 years.
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Old 10-22-2008, 12:57 PM #6
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Hello, my name is Sally and I'm an Alchol..er..SPMSic.

I've been SPMS for about 10 yrs now ( of my 40+ yrs with MS), on LDN for, going on 6 yrs and I'm 68..

And You, KM??
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Old 10-22-2008, 01:36 PM #7
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I'm 64 - on disability since 1998 - MS for 35 years - SPMS for about 15 years - actually never really was relapsing/remitting after the first 15 years - Copazone for almost a year -don't know if I'll stay on it - LDN sounds good - have no idea what my neuro thinks about LDN - I never heard of LDN until you mentioned it - see him next month - diazapam to sleep without spasms - not working too well - baclofen during the day - not sure of that either - omneprazole and fosamax - those I'm sure of !!!!
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Old 10-22-2008, 03:45 PM #8
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I have a question for the SPMSer's here.....and I don't mean to hijack your thread......but how do you know you're SPMS? I know the neuro tells you, but what signs do they look for? Is there criteria you have to meet in order to be deemed SPMS?

Thanks!
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Old 10-22-2008, 04:12 PM #9
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don't know about everybody else - but I know I'm gradually going downhill - no big flares -no remissions - then just tripping and falling - losing my balance - my memory - just a worsening - slow but steady -
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Old 10-22-2008, 04:41 PM #10
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Same here. Less relapses, slow progression. Downhill but slowly. Some would tell you like Jim that spms is better in that you don't have to deal with constant flares and stuff like that. You don't do as many visits, testing, etc. once your spms or ppms.
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