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Old 11-02-2008, 10:41 AM #1
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Red face Humiliation, cog probs, & crying

On Wednesday dh and I had our bankruptcy hearing . I'm embarrassed to even talk about. Well, we get to the courthouse and of course there isn't enough disabled parking so I had to walk way too far with my rollator. By the time we get to our floor I'm already exhausted. The hearing room was full of other people and their attorneys. Everyone can hear what you say to the judge . As soon as I sat down I started to cry . I could not stop no matter how hard I tried. When our turn came, about 20 minutes later, we sat at the table with the judge and she looked at me and said 'you have MS, don't you?'. Then she said I wouldn't have to talk at all. Thank goodness for small favors . I still kept crying though, quiet crying, but my nose was running like a faucet, yuck. By the time we were done, I couldn't even look up when we left the room. It was just so humiliating. I know this is from my MS. I seem to have a problem with controlling my emotions lately. Stress...duh. As for the cog thing, a week ago my dh and I met with a financial adviser at our home for an hour and a half. Two days later I was at my dh's work picnic and some guy talked to me for 10 minutes like he knew me. I played along . My dh told me afterward that he was our financial adviser! I did not even have a vague recollection of the gentleman's face . Also that week, I left the water running in the bathroom sink the entire time I was putting on my make up! I didn't even notice this at all. Dh came in and turned it off and looked at me like I'd lost my mind. Now I'm scheduled for another mri. These cog problems scare me more than anything else about my MS (except for possible blindness). Thanks in advance for reading this far. Nobody understands more than all of you . Oh, btw, I read, do crossword puzzles, play scrabble, etc. to try to keep myself mentally sharp. I wish there was a med to help with this symptom.
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Old 11-02-2008, 11:05 AM #2
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Aww, sweetie, I'm so sorry about all this. I'm gonna call you tomorrow morning....let me know when's the best time or if tomorrow's not a good day.

I have the cog problems, too, sometimes. I'd get confused about simple things...like where to look for something or where to put something once I was finished using it. Also, with word recall. Since I've been on LDN it's gotten much better. Not sure if it's because of the med or if I was going to get better anyway. I don't care....it's better and that's all that matters.

I know of some people with MS who are on Aricept. It's not prescribed specifically for MS but it can help with cognitive problems associated with MS and other diseases. Your doctor might suggest that. You might want to do some Internet research on the different meds available for cognitive difficulties so you'll be familiar with the side effects and names. I'd print out the info on the ones I was interested in. I have to print everything out if I want to remember it!!

I hope that after this election is over you'll find that you're better. I know you've been volunteering countless hours and even though you're not physically taxing yourself the mental overload can cause havoc to our systems. I hope you can get some much needed rest after all this is over.

Three more days................
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Old 11-02-2008, 11:21 AM #3
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Thanks K . I have been doing way too much these past couple of weeks (mainly campaign volunteering). Yesterday I went out canvassing (to 'get out the vote') on my scooter with my son and his girlfriend. That's my last event, if I can control myself, LOL. I've thought about Arricept and I'll talk to my neuro about it. Call me tomorrow morning, I miss ya! I have the feeling that I won't be able to sleep at all on Tuesday night .
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Old 11-02-2008, 11:36 AM #4
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Oh Joelle, I am so so sorry you are going through this awful time. MS really stinks and it makes life stink, sometimes, too.. It sounds, to me, like you may need an AD, or if you are already one one, to up the doseage.

I was on Paxil and now Prozac...I like the Prozac better, now, because it gives me a little more energy and Yes, I am on LDN, too. I know that they are both helping me, to be more alert and less tired. Add some LDN to your trick bag..

I hate it, when my Friends are hurting.. Please, get some rest and feel better soon..
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Old 11-02-2008, 11:50 AM #5
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I bet everyone there also felt like crying right along with you. Sending you tons of hugs. Jules

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Old 11-02-2008, 11:53 AM #6
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((((Joelle))))
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Old 11-02-2008, 12:47 PM #7
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Joelle, Sorry you have been going through so much. I want to thank you for the work you have done in the election. The cynical side of me keeps worrying about the outcome.
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Old 11-02-2008, 12:57 PM #8
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Quote:
Originally Posted by barb02 View Post
Joelle, Sorry you have been going through so much. I want to thank you for the work you have done in the election. The cynical side of me keeps worrying about the outcome.
Me too, Barb. I think that's why I've been myself so hard. If I can reach just one more voter, that's what goes through mind. 2000 was so close in Florida. God save me from myself, LOL.
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Old 11-02-2008, 01:09 PM #9
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Hello Joelle you have been through a lot this year, emotionally and physically. you could still be realing from everything. Try to take it easier and dont beat yourself up over the cog, it will only make it worse, I have been where you are at. the fog will lift
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Old 11-02-2008, 01:28 PM #10
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Stress makes my cognitive boggles even worse. I can't imagine what I would be like in your situation--I probably wouldn't even know my own name or be able to speak other than gibberish.
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