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11-09-2008, 11:26 AM
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Magnate
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Yabbit and I attended a seminar yesterday that was sponsored by Biogen/MSActiveSource.
There was pretty good attendance- maybe 40 people, good crowd for a Saturday a.m. in Bangor, Maine. I'd say the attendees were spread out across the board, some PPMS, some SPMS, some RRMS, caregivers and a few professional folks. There was a buffet breakfast. They fed us pretty good! They gave out bags with pens, day planner calendars, CDs, information on Avonex and a bunch of new Tysabri information/items. The featured speaker just happened to be my neuro. He did a lively presentation on MS, explained the differences, didn't pull any punches when he had to say "No one knows" He talked about the CRABs, Tyabri, efficacy rates, how changing meds may or may not help people, etc. There was another speaker scheduled. a patient advocate who was a no show. There were two Biogen reps there, who fielded a few questions that he could not answer. After his talk, he opened the floor to questions and there were a lot of them. He answered questions about imaging, symptoms, progression, drug switching, Tysabri risks and benefits, etc. He even talked about one of his Tysabri patients who was going for a new MRI because she was twitching, and how he would rather be cautious no matter what the symptom...  (picture me *smacking* Yabbit for looking right at me!) All in all a very good presentation. If you get an invite to attend one of these, take advantage of it and go!  I got a lot of answers about Tysabri and will post those specifically on the Tysabri thread.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | AfterMyNap (11-12-2008), CayoKay (11-10-2008), DM (11-10-2008), ewizabeth (11-09-2008), JoeMac (11-11-2008), karousel (11-09-2008), Kitty (11-09-2008), Koala77 (11-09-2008), Natalie8 (11-11-2008), NurseNancy (11-09-2008), SallyC (11-09-2008), SandyC (11-09-2008), Taffy (11-09-2008), tovaxin_lab_rat (11-09-2008), Twinkletoes (11-10-2008), Victor H (11-09-2008), weegot5kiz (11-09-2008), woodhaven (11-09-2008), yeahbut (11-10-2008) |
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11-09-2008, 11:46 AM
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Wisest Elder Ever
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Thanks for the update, RW! I'm glad ya'll had a good time and got to spend the day together.
So....are you gonna send Cindy your pens?? 
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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11-09-2008, 12:22 PM
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In Remembrance
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Sounds like a fun filled and yet informative day for you both.
Thanks for the report.. 
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ Last edited by SallyC; 11-09-2008 at 12:39 PM. |
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11-09-2008, 12:37 PM
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Magnate
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I forgot to add that they gave us a lovely umbrella! It will come in handy here with the rain we have been getting lately!
Yabbit! Git in here and post your notes!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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11-09-2008, 01:07 PM
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Elder
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You know they're giving all this stuff away now b/c after Jan 1 they won't be able to do that anymore! Rules are a changing!!!
Thanks for the brief synopsis RW. Yabbit, where's your input????
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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11-09-2008, 01:15 PM
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Senior Member
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Thanks for the update! I'd drive 3 hours for a free pen so the breakfast would just be the icing on the cake, lol.
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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