Catch, that's just it: learning a new "you" and what is "normal" for you. It's different than what was "normal" for you before. ;)

I'm well into my second year of this carp (well, the 2nd year since diagnosis) and I still dont know when to freak or not to freak out. The burning was irritating me, freaking me out a lot, but when I also had numbness going around my waist and down the other night, that's when I started to panic.

I was already really uncomfortable from the burn (which was so bad that I couldnt sleep or get comfortable doing anything) then that weird numbness started wanting my attention too. When you're really tired and in pain, then something even more disturbing starts in on you, then it's easy to panic a bunch.

The numbness around my waist lasted about a day or more, but now it's not as bad. My leg is still burning, but now it's pretty much around the kneecap and up. I have some numbness at my hip that goes in towards the stomach and another area where I really dont want to have numbness.

The burn is now down to probably what I would describe as very hot sunlight shining on my leg (maybe a little hotter than that) The burning I had the other night, I'd probably describe that as "molten lava" being poured over my leg.

My legs are a little stumbly now. (that wasnt really there before) I went out with my boyfriend sunday and ended up dragging a cane with me to the movies because I didnt trust my legs to walk very well, and I was also dizzy (the cane was more for the dizzies than for the stumblies)

Today, I've got some mild numbness on my left elbow (same side as the burning) So, I'm guessing something is going wonko somewhere in my spine or brain that is making my left side all weird.

I guess that's part of the learning curve: when should I freak out? I know I've done it myself Sorry to hear you're still not feeling much better. You might be right, you might need steroids for this one to get some relief. :hug:

It's not surprising you feel like you're probably freaking out at this point, probably because you haven't had a break in your symptoms. Hope you get some relief soon. :)

I've been feeling a little better the past day or so. Today at one point, I noticed that I didnt feel the burning, but then a little while after I noticed that, it started to burn again (probably because I thought about it)

It's getting really really cold here, and walking out into the cold makes the burn wake up a little bit. I just got back inside from getting the mail. Got back into the house and the flaming thigh was starting to light up a little bit. Probably from the stress of getting two letters from my copaxone pharmacy. I was supposed to get two refunds from them, but instead they sent me two BILLS for a box of C that I ordered on the 10th. (SS got me on a program that pays my entire co-pay for the C, and they screwed things up, then tried to fix it, and now it's more screwed up)

I shouldnt have gotten those bills. I paid with a credit card when I ordered. So now I'm a bit stressed, which I think is making my thigh heat up now. I'm not paying for SS's screw-up...

So sorry you're having to deal with SS on top of everything else. That's the way it seems to go, isn't it?

Hope you're feeling fine now.:wink: