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11-17-2008, 06:17 PM | #1 | |||
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Elder
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A friend just emailed me and said that the guy she goes to for Watsu (I think that's what it's called) said that "warm water is no longer a no-no for MS patients" and that he "did the research and found that out."
What did I miss? The last I knew, some of us are more sensitive to heat than others, but I don't remember seeing any recent research that changed the basic facts. I wonder if he meant that the symptoms exacerbated by raised body temperature are usually transient? Anybody hear anything I didn't??
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11-17-2008, 07:07 PM | #2 | |||
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Senior Member
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Maybe okay for some but this little chicken can't take the heat and I wilt.
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11-17-2008, 08:35 PM | #3 | |||
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Elder
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I think the warm/hot water can be ok for some MSers. I dont normally have a problem with heat unless it's insanely hot outside, but if I've got a weird flare going on (usually a visual flare) the heat drives me bonkers.
I can tell when I've got inflammation going on somewhere, because I'll either get a l'hermittes when I bend my head forward, or taking a warm shower or bath will set off some numbness. If I'm not flaring, I'm fine with hot showers (love them in the wintertime) I do try to be careful with hot showers, because sometimes I dont know I've got a flare coming on until I take too long of a hot shower.
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11-17-2008, 08:35 PM | #4 | |||
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Fabulous Belizean Member
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possibly that's what he meant, B2y, but you're right, for *some* people too much heat is a bad idea...
I think that blanket statements of that sort sometimes do more to upset the applecart than carefully phrased caveats. LOL !! from Mult-Sclerosis dot Org: Uhthoff's symptom is a condition most commonly observed multiple sclerosis and particularly in Optic Neuritis where small increases in body temperature (hyperthermia) caused by exercise, hot baths or showers or otherwise, cause a worsening of symptoms. The Uhthoff induced symptoms tend to go away as the body returns to its correct temperature after anything from several minutes to a few hours has passed. A very few cases have been reported where new symptoms have been induced by hyperthermia that have not eased away as the hyperthermia passes. (snipped) One explanation of Uhthoff's symptom is that hyperthermia induces a heat-linked neuro-blockade of partially demyelinated axons.. http://www.mult-sclerosis.org/Uhthoffssymptom.html B2Y, "warm" water may be okay (for him, and many others), just not as hot as it is in a hot tub, for example, like Janie, that'd totally wipe ME out, transient or not. some people can handle 110 degree-days in the desert, and some can't handle 90... my doc said to try and keep cool, use gel-headbands and neckerkechiefs that get soaked, frozen, and placed around the neck to lower core body temp. and never exercise during the heat of day, or in the sun. he was clear to state that for *some people with MS* the effects of heat may NOT be transient, so, better safe than sorry... and that's the advice I've kept to for a decade. I'd also appreciate hearing about it if anyone else has heard differently.
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11-17-2008, 09:06 PM | #5 | |||
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Magnate
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undx..but hey...I cant be in a HOT shower very long, or for sure no hot tub...or like sauna...I would fall over...weak..or dizziness, or eye blurrs...but hey I dont have anythign neurological according to the neuros lol...sarah
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"Thanks for this!" says: | jprinz99 (11-19-2008) |
11-18-2008, 12:21 AM | #6 | |||
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Grand Magnate
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Maybe it's all semantics..I'm fine with "warm" water, but hot tubs and screaming hot soaks in the bathtub are only fond memories...
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"Thanks for this!" says: | FinLady (11-18-2008), weegot5kiz (11-18-2008) |
11-18-2008, 02:14 AM | #7 | |||
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Grand Magnate
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Cayokay is correct, at least according to everything I've heard.
Before MRI's, they used to dip us in hot baths to see if that would stimulate symptoms, so I'm guessing a lot of people do have problem with heat. Perhaps that symptom tends to become more apparent the longer we've had the disease too . . . but people are getting dx much earlier these days. I've never heard heat causes "permanent" damage, but it may trigger symptoms for some people. My symptoms always let up let up when I cool off though . . . so I'd be surprised if we need to be concerned beyond that. Cherie
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11-18-2008, 01:01 PM | #8 | |||
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Elder Member
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i love hot baths and cant take one any more it knocks me out big time, so whatever the research, their conclusions do not help me any and are wrong in my eyes
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11-18-2008, 01:58 PM | #9 | |||
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In Remembrance
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Hot anything is bad news for me....even too hot soup.
When I get overheated, I stick my legs under some cold running water and it purks me right up. Got to keep that core temp down..
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"Thanks for this!" says: | CayoKay (11-19-2008) |
11-18-2008, 02:31 PM | #10 | |||
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Magnate
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Maybe it's symptom based?
For me, a hot bath is the BEST therapy for my sensory symptoms I experience: pain and burning. Of course, my unwanted other sensory symptoms that lie dormant for the most part seem to return in heat and humidity from weather. Strange stuff!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | 4boysmom (11-18-2008) |
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