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Old 04-01-2009, 12:09 PM #1
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Default MBP8298 Dirutide
On this med Half way thru a two year study.I will write more if people are interested.Jim
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Old 04-01-2009, 12:40 PM #2
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Sure, Jim...Welcome and please tell us more about your Med. Are you on the real thing? Is it helping you?

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Old 04-01-2009, 01:05 PM #3
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Welcome. We're all hungry for knowledge so we'd love to hear your experiences.
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Old 04-01-2009, 01:44 PM #4
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yes please! tell us more.
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Old 04-01-2009, 02:10 PM #5
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Good for you and yes, please keep us informed
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Old 04-01-2009, 03:07 PM #6
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Please update us on your clinical trial details. Also, Welcome to the forum!
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Old 04-01-2009, 08:17 PM #7
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Default MBP8298 Dirucotide
Quote:
Originally Posted by SallyC View Post
Sure, Jim...Welcome and please tell us more about your Med. Are you on the real thing? Is it helping you?
I sure could use some help,don't want to mess up.If i write a long letter on my drug and I lose it argh.I just joined and I don't want to mess up.Now I'm in a four year study of this drug.But I'm sure that I received the placebo.At the end of the two years I started the real drug.That was in Feb of this year.I lost a lot in two years which has left me with a very black depression.Lost, my health,happiness and hope.Till I read the post today on this site,it can work.It has been only a month.Plus the two and a half years before Feb.They still haven't told me if I was on placebo or not.So this has been the worst two years of my life.I can't put into words how hard this has been.Trusting a Dr that I have seen since 1984 choose to gamble my health away.I would not do this to any one.Many times I said how does this help anyone losing my ability to walk.Stress makes MS worse and I've had more than enough.I dont want to give anyone false hope but this is what has happened to me.Should I tell my story or just if this drug helps?Thanks For listening Jim
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Old 04-01-2009, 09:20 PM #8
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Hey Jim, just join in with us. We will support you, no matter what your drug of choice. Keep us up to date since you are getting the real thing now. We are all in the same boat....waiting, hoping and living.
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Old 04-02-2009, 09:26 AM #9
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we all have different drugs of choice, and some chose no drugs at all. We are always happy to hear others stories.

If you are afraid of losing it, type it out on your word processor program, then copy it, and paste it to your response here. Ta da! no muss no fuss.

looking forward to hearing from you.
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Old 04-02-2009, 10:48 AM #10
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Hi, Jim! Welcome to MS NeuroTalk, and we're glad you found us.

Do please keep us informed about your study. I'm so sorry you lost so much while on the placebo.

Best of luck to you on the clinical trial drug.
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