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Old 04-01-2009, 12:09 PM #1
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Default MBP8298 Dirutide
On this med Half way thru a two year study.I will write more if people are interested.Jim
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Old 04-01-2009, 12:40 PM #2
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Sure, Jim...Welcome and please tell us more about your Med. Are you on the real thing? Is it helping you?

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Old 04-01-2009, 01:05 PM #3
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Welcome. We're all hungry for knowledge so we'd love to hear your experiences.
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2004 to present - Trigeminal Neuralgia
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Old 04-01-2009, 01:44 PM #4
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yes please! tell us more.
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Old 04-01-2009, 02:10 PM #5
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Good for you and yes, please keep us informed
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Old 04-01-2009, 03:07 PM #6
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Please update us on your clinical trial details. Also, Welcome to the forum!
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Old 04-01-2009, 07:07 PM #7
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Default MBP8298 Dirucotide
Hope I spelled it right this time.I will be posting my experience with the drug study.As soon as I can write it.Not too sure about how this works.Dont want to write a long letter and have it lost!Jim
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Old 04-01-2009, 07:37 PM #8
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Jim,

What many of us do is type out a long reply on a Notepad or Word processor document. Then just copy and paste. That way you have it saved.

You might have to hit the enter key 2x to leave spaces between paragraphs. The spacs don't always copy correct. But it sure is better than having one go *poof*.

Another hint...if it's really long, split it up into a few posts. It makes it easy for people to read.

If you need any help, let me know. Welcome.
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Old 04-01-2009, 08:17 PM #9
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Quote:
Originally Posted by SallyC View Post
Sure, Jim...Welcome and please tell us more about your Med. Are you on the real thing? Is it helping you?
I sure could use some help,don't want to mess up.If i write a long letter on my drug and I lose it argh.I just joined and I don't want to mess up.Now I'm in a four year study of this drug.But I'm sure that I received the placebo.At the end of the two years I started the real drug.That was in Feb of this year.I lost a lot in two years which has left me with a very black depression.Lost, my health,happiness and hope.Till I read the post today on this site,it can work.It has been only a month.Plus the two and a half years before Feb.They still haven't told me if I was on placebo or not.So this has been the worst two years of my life.I can't put into words how hard this has been.Trusting a Dr that I have seen since 1984 choose to gamble my health away.I would not do this to any one.Many times I said how does this help anyone losing my ability to walk.Stress makes MS worse and I've had more than enough.I dont want to give anyone false hope but this is what has happened to me.Should I tell my story or just if this drug helps?Thanks For listening Jim
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Old 04-01-2009, 09:20 PM #10
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Hey Jim, just join in with us. We will support you, no matter what your drug of choice. Keep us up to date since you are getting the real thing now. We are all in the same boat....waiting, hoping and living.
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