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11-24-2008, 10:40 PM | #11 | |||
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Grand Magnate
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i'm sorry about this cheryl.
i hope you and your dr will come up with another option that helps you.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | tovaxin_lab_rat (11-24-2008) |
11-24-2008, 10:41 PM | #12 | |||
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Wise Elder
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Sorry to hear this. I hope your neuro is open to the LDN theory. Jim's doctor is investigating it as we speak. He has some neuro friends in Cali he's talking to.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: | SallyC (11-24-2008), tovaxin_lab_rat (11-24-2008) |
11-24-2008, 11:04 PM | #13 | ||
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Senior Member
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Now that just sucks.
I hope that something else comes your way fast. -Vic |
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"Thanks for this!" says: | tovaxin_lab_rat (11-24-2008) |
11-25-2008, 12:11 AM | #14 | ||
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Senior Member
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Wow. That just stinks they had to stop the trial. My neuro offered to get me enrolled in it. I just wasn't ready to take on all that was required for it. So I have followed your posts hoping this would offer more hope than we have seen with the others.
Cheryl, I hope they find something for you soon.
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Worrying is like a rocking chair it gives you something to do, but it doesn't get you anywhere ~Van Wilder |
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"Thanks for this!" says: | tovaxin_lab_rat (11-25-2008) |
11-25-2008, 01:47 AM | #15 | |||
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Grand Magnate
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Awwww, (((Cheryl))), how disappointing for you. And all of us who were following your Tovaxin trial. I'm so sorry.
But at least now you can take drugs to relieve your cold symptoms, etc. I know you've really struggled with illness during this trial.
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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"Thanks for this!" says: | tovaxin_lab_rat (11-25-2008) |
11-25-2008, 08:50 AM | #16 | ||
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Member
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I'm sorry to hear this too, Cheryl. Hope your neuro's agreeable to the LDN.
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"Thanks for this!" says: | tovaxin_lab_rat (11-25-2008) |
11-25-2008, 09:19 AM | #17 | ||
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Magnate
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Im sorry Cheryl.
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sox . . |
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"Thanks for this!" says: | tovaxin_lab_rat (11-25-2008) |
11-25-2008, 09:37 AM | #18 | |||
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Elder
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Thanks everyone. It's going to be interesting for all of us. Especially those who were in the trial and not receiving the vaccine and who have just started the open label and have received at least two doses. I feel bad for everyone.
It's sad when a company is $200k short and these mismanaged big companies are getting bailout money.... Who knows the real story...anyway....I've got to stay positive. I've had too much negative in my life in the past couple of weeks.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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11-25-2008, 09:40 AM | #19 | |||
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Member
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I know my reaction is unreasonable, but I was chilled and angered by the tone of the report that was filed.
I guess that it's focus had to be on costs and fiscal intentions, but if they could speak to the issue of severance and continuing benefits, why could they not address the realities faced by the 100 or so MS patients who have done so much to get their product this far, only to be dumped. At least offer a word of recognition, of thanks, to the human "lab rats" they used. Sorry for my grumble Cheryl, and even sorrier about your news.
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tante Last edited by tante; 11-25-2008 at 09:41 AM. Reason: poor choice of words |
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"Thanks for this!" says: | CayoKay (11-27-2008), ewizabeth (11-25-2008), Koala77 (11-29-2008), SallyC (11-25-2008), tovaxin_lab_rat (11-25-2008), Twinkletoes (11-25-2008), TwoKidsTwoCats (11-25-2008) |
11-25-2008, 09:44 AM | #20 | |||
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Elder
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Quote:
We are all receiving phone calls from site coordinators who are compassionate and caring. At least I didn't have to talk to the one who has been following me who cannot answer any questions!!! That was the big plus!!!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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